My Personal Fundraising Page

 

My family and I are once again participating in a Strides for CJD event. This year Geoff and Joanne and I will be in Boston for their Walk. Hopefully, we will also have some other friends with us to fundraise and celebrate Nathan. We continue to work toward a therapeutic or cure for this horrific disease. We wholeheartedly support the CJD Foundation as the only resource for families of patients and for the doctors who try to cope with the overwhelming effects of CJD.

Instead of forming a "Team Nathan" this year, I have decided to join up with the Vallabh Minikel Lab team which was already registered in Boston. This team is actually working in the Broad Institute in Boston to find a solution to prion diseases. Sonia Vallabh and her husband Eric Minkel are brilliant scientists who are dedicating their lives to a treatment or cure for this currently untreatable illness. Upon Nathan's diagnosis, we were immediately referred to palliative care and Hospice. In the future, with the help of this lab, those diagnosed with CJD or carrying genetic markers may be given hope because of the work being done by these people in this lab.

Thank you to everyone who donates to this extremely important work. May God bless you and your families.  We love you Nathan.

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Register

Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

How to Register

My Supporters

  • Anonymous Last month $500.00
  • Susan P. Olivo September 2025 $250.00
  • Steve Helbing September 2025 $1,060.00
  • Timothy Coughlon September 2025 $1,000.00
  • Anonymous September 2025 $106.00
  • Margaret Christian September 2025 $5,000.00
  • Steve Helbing September 2025 $1,060.00
  • Anonymous September 2025 $1,060.00
  • Linda & Carl Kirby-Green September 2025 $1,060.00
  • Geoffrey Christian September 2025 $1,060.00

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My Teammates

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.