My Personal Fundraising Page

Marianne's Memory

This should not be Marianne I am writing about. She was a healthy and joyful wife, mother, and "Mimi", who came from a family of extreme longevity. Her parents and several of her grandparents lived into their 90's. It was assumed as we aged, we would have time to visit new places and revisit old friends. Yet she was inexplicably stricken with one of the most cruel diseases of mankind and taken from us far too soon. Cruetzfeld-Jacob Disease is incurable, untreatable, and usually rapidly fatal. The usual course is an extremely rapid decline over 6-12 months. Ulimately, she was "fortunate" to have survived this disease for over 5 years from its first signs on an MRI. She was relatively well-functioning and always hopeful until the end. Most of those who knew Marianne were unaware of how terribly sick she was over her last 6 months when she withdrew from all except her family. She did not want to burden others with what she was going through. To those of us who did know, she was an inspiration and a model of grace. We lost Marianne 20 months ago, yet it never feels real. Every day we remember funny, quirky stories about her that make us smile, even though some of those memories make us cry. Luckily, we have a limetime of happy memories with Marianne to keep us warm.

Marianne's memory will always be a blessing to us.

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Register

Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

How to Register

My Supporters

  • Lorraine Bauman Last month $20.00
  • Laurie Turner Last month $100.00
  • Diane Van Buskirk October 2025 $20.00
  • Nicole Frederick October 2025 $50.00
  • Zachary Gideon Standing with you all in her honor.  October 2025 $53.00
  • Delia Flynn My heart goes out to all of you who knew and love Marianne, especially her dear family.  You are an inspiration to all us in honoring and respecting a beautiful human being, especially in her greatest hour of need. October 2025 $250.00
  • Laurie Turner Last month $100.00
  • Cody Gleason October 2025 $100.00
  • Jill Reist October 2025 $100.00
  • Zachary Gideon Standing with you all in her honor.  October 2025 $53.00

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My Teammates

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.