Team Layla Jane

Why We Walk

Thank you for visiting our team page! This is our 3rd year participating in the Congenital Heart Walk. On August 30, 2022, we lost our baby girl, Layla Jane, to a congenital heart defect. Layla was born with Hypoplastic Left Heart Syndrome (HLHS) and though she fought hard, it turned out to be more than her body could handle. We kissed her goodbye and we vowed to do our best to honor her and to try and make a difference. That year, we joined the Congenital Heart Walk and raised over $5,000 for The Children's Heart Foundation, thanks to the incredible love and support from our family and friends. This year, we have two reasons to walk. Our newest addition, Evan Michael, was born a healthy boy (what a relief), but a routine visit to the pediatrician would soon uncover a heart murmur. We now know that Evan has a mild coarctation of the aorta. While his CHD is far less severe than Layla's, it still fuels us to strive for change. 

Every 15 minutes in the United States, a baby is born with a congenital heart defect, making CHDs the most common birth defect in our country. The Congenital Heart Walk is dedicated to making a difference. Our mission is clear - we aim to raise funds to support The Children's Heart Foundation in its quest to advance the diagnosis, treatment, and prevention of CHDs by funding groundbreaking research.

We invite you to join us in this mission. By supporting our team or even walking with us, you're contributing to research that can save and enhance the lives of infants born with CHDs, as well as children and adults living with these conditions. Your support makes a significant impact, and for that, we want to say a heartfelt thank you.

Will you join us in making a difference? Please consider supporting our team or walking with us. Every step we take brings us closer to improving the lives of those affected by congenital heart defects.

Our Team

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Recent Activity

Our Supporters

  • Jaci and David Diez-Perez We love how you honor Layla so well Last month $35.00
  • Deirdre Colucci August 2024 $50.00
  • Kelly Demby Keep spreading your message! Happy Birthday to Layla ❤️ August 2024 $51.50
  • Anonymous August 2024
  • Raubi Perilli Happy 2nd Heavenly Birthday, Layla. We love you. ♥️ Aunt RaRa and Uncle DiDi August 2024 $51.50
  • Cathy Daley August 2024 $206.00
  • Lindsey Daley For Layla August 2024 $103.00
  • Kelly Demby Keep spreading your message! Happy Birthday to Layla ❤️ August 2024 $51.50
  • Raubi Perilli Happy 2nd Heavenly Birthday, Layla. We love you. ♥️ Aunt RaRa and Uncle DiDi August 2024 $51.50
  • Jan & Mike Essenwein In memory of Layla August 2024 $51.50