Our Team Fundraising Page

Ben has been SEIZURE FREE since December 5, 2018! Friends and family have witnessed, in real life or through social media updates, some tough outcomes for Ben over the past two years since his first seizure and Doose Syndrome diagnosis--seizures that were unpredictable, hard to treat, and tough to watch, drop seizures that led to significant injuries, and medication and seizure side effects that affected his behavior and cognitive abilities. We finally landed on the right treatment combo (Depakote, Onfi, Felbatol, Modified Atkins Diet) that stopped his seizures for now and we are thrilled to have reached this milestone! 

In November 2018 Ben was having hundreds of seizures a day. Seizure types included myoclonic/jerk seizures, absence/staring seizures, and atonic/drop seizures. During this time, he powerfully landed on his chin from an atonic/drop seizure that resulted in injuries: a laceration needing 7 stitches, knocking out a tooth and fracturing a molar, and fracturing his jaw in two locations. A week after these injuries, as he reached the therapeatic dose of Felbatol, we witnessed Ben's last seizure! 

We are thankful for everyone who supports, prays for, and loves Ben. Ben's epilepsy doesn't play fair but we continue to fight and remain hopeful that he will be seizure free for many more days, months, and years ahead!

Our Team

$1,101.00

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$1,200.00

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Our Supporters

  • Jim Vollhaber Last month $100.00
  • Combine for a Cure March 2019 $770.00
  • Teri Otte March 2019 $25.00
  • Myra Radman March 2019 $25.00
  • Marilyn Otte March 2019 $25.00
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  • Combine for a Cure March 2019 $770.00
  • Jim Vollhaber Last month $100.00
  • Nancy Radman March 2019 $50.00
  • Teri Otte March 2019 $25.00
  • Myra Radman March 2019 $25.00
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