Team Lola's 200ish Miles   ○   Team Lola

Stefan Bisciglia

Ragnar Northwest Passage 2024 TEAM LOLA!

Team Lola is once again joining up with Beat Childhood Cancer to run 200ish miles of Ragnar craziness. The Ragnar relay races put 12 runners in 2 vans (6 in each), running nearly 200 miles over 2 days. Each runner runs 3 legs (anywhere from 3 to 9 miles per leg) over that time. It winds up an average of ~16 miles per runner total over the experience. About Lola Mae Lola Mae was a joyful spirit since the moment we first met her. She smiled big, hugged softly, and twirled beautifully. She was carefree and imaginative, always playing and happy. She was gentle, but feisty! At two years old she was already defending her big sister from unfriendly children on the playground. She was a kind big sister as well, always welcoming her little brother into her arms. When Lola Mae was 4 years old she was diagnosed with neuroblastoma. We knew she was brave, but we would have never known before cancer that her courage was without limits. She fought hard through so much, and she did so saying, “I can do it!” Neuroblastoma is a terrible and aggressive disease. About half of the children diagnosed with high risk NB do not make it into remission. About half of the children that do, later relapse. There is no cure for relapsed NB. The standard treatment plan is 18 months of aggressive: everything. Early in Lola’s journey, Lola's parents were at clinic getting her weekly blood draws when a nurse new to them asked what type of cancer she had. When they answered, he gave me a sympathetic look and said, “Man, those kids have to go through it all.” The following is a summarized list of what Lola went through: surgery to place line for medicine and blood draws, 4 rounds of chemotherapy where 2 types of chemo given for 3-5 days, surgery to remove the tumor, more chemo, and MIBG therapy (a type of radiation given internally). Next she was supposed to have tandem stem cell transplants, external radiation, and 6 months of immunotherapy. Lola relapsed just before her scheduled transplant. She went through 3 rounds of a chemo and antibody combination, was again scheduled for her transplant, but relapsed again. She then went through another round of chemo, trying to get her well enough for a trial. But by then her cancer had completely stopped responding to chemotherapy. She had radiation to her legs to stop the pain from the tumors in her bone marrow which were making her bones bow. She had radiation to her skull to stop the tumor near her eyes from further taking her eyesight. She had radiation to her back and pelvis when the tumor growing from her marrow was so large it pushed her femur out of the socket. At home they gave her cannabis oil, juiced cancer-fighting vegetables, used essential oils and natural supplements. All of this was done with the hope of curing Lola. But her cure came after 12 months of fighting when she checked out of the hospital for the last time and went to heaven. Why We Fight We miss precious Lola every moment. No child should have to endure such things. No family should endure the loss of their child. Please support Beat Childhood Cancer. They are working hard to cure neuroblastoma and other cancers through research and trials. Many people on the board of BeatCC are parents of NB kids and they are fighting back against cancer. Fight back with us! Together, we will beat childhood cancer.

$1,512.75

achieved

$1,500.00

goal

of your goal reached

My Supporters

  • Chip Lewis Godspeed to find a cure for this type of cancer and those like it. Thoughts and prayers are with Lola’s family and friends. Together we can make a difference, provide hope and Be the Good. July 2024 $175.00
  • Ann Lewis We’ll be cheering you on! Praying for a cure for this horrific childhood disease July 2024 $75.00
  • Cricket Ducat February 2024 $105.50
  • Julie Howard I stand in the fight with you! February 2024 $105.50
  • Alex Sharpe An amazing story and effort. Best of luck. God bless. February 2024 $499.00
  • Specialty Cruise & Villas Inc. We are so proud to support this important research in memory of Lola Mae! February 2024 $500.00
  • Alex Sharpe An amazing story and effort. Best of luck. God bless. February 2024 $499.00
  • Chip Lewis Godspeed to find a cure for this type of cancer and those like it. Thoughts and prayers are with Lola’s family and friends. Together we can make a difference, provide hope and Be the Good. July 2024 $175.00
  • Cricket Ducat February 2024 $105.50
  • Julie Howard I stand in the fight with you! February 2024 $105.50