Registration

  • Date: Saturday, June 11th

  • Time: Check-In: 9:30 AM

  • Welcome: 10:45 AM

  • Walk: 11:00 AM

  • Registration: $25.00 for adults $20 for children ages 5-11.

  • Includes We're on Fire walk t-shirt and participation medal as supplies last.

Please bring your lunch, comfort items (chairs, cushions, blankets, etc) and stay after the walk to gather with other CRPS survivors, caregivers and supporters for an afternoon of friendship and community.

Location: Veterans Park
4554 Avenida Granada 
Cypress, CA 90630
 

The walk is designed with CRPSers in mind! The loop is just shy of a 1/2 mile. There will be chairs along the path for those that may need to take a break! Canes, walking sticks, walkers, wheelchairs, and scooters are all welcomed!

It’s NOT a race! In fact, it’s all about enjoying each other's company, getting to know each other, learning from one another, spreading awareness, and raising funds for RSDSA —- our cause!

For more information please email Kristie McCurdy or Rose Temblador at  CRPSweRonfire@gmail.com

Recent Activity

The Orange County CRPS Survivors and Caregivers Support Group is excited to host the RSDCA We're on Fire! Walk, Roll, Stroll - CRPS Awareness Walk!

Complex Regional Pain Syndrome (CRPS) also known as Reflex Sympathetic Dystrophy (RSD), is a rare, debilitating neuro-inflammatory condition. It often leaves its victims in excruciating pain, requiring care from multiple medical professionals, and dependent on family and friends to accomplish the tasks of daily living. 

CRPS/RSD often develops after a fracture, sprain, surgery, or other, even minor, trauma to the body. It has the highest rated pain, 42 out of 50, on the McGill Pain Index, a scale that physicians use to measure and compare pain. It is rated more painful than amputation of a digit without anesthesia, childbirth, and even non-terminal cancer. In addition, the pain of CRPS/RSD is unrelenting and is experienced 24 hours a day, 7 days a week. Often, those with CRPS/RSD cannot even be touched by their loved ones because the pain is so excruciating. Since CRPS/RSD is a rare disease with less than 200,000 people in the United States diagnosed with it; there is little incentive for pharmaceutical companies or the medical community to address underlying causes or to develop effective treatments. For many individuals, this results in a progressive worsening of symptoms, disability and a life of unbearable pain.

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RSDSA Sponsors

Abbott

The Baker Family Foundation

Dr. & Mrs. Lawrence and Judy Zager in loving memory of Hunter Lia Zager

Dr. & Mrs. Lawrence and Judy Zager in loving memory of Hunter Lia Zager

Michael and Lynn Coatney

Michael and Lynn Coatney

The Cochran Firm - National CRPS/RSD Lawyers

Bronze Sponsors

Por Vida Natural Nutrition and CBD

Signature Mobile Detailing

USC Pain Center

Community

Facebook Lives and conferences unite CRPS Warriors and clinicians to hear about the latest treatment options. E-newsletter, In Rare Form, updates the community monthly. 

Advocacy

We help our community advocate for healthcare and treatments. The Advocacy Committee collaborates with other Rare Disease organizations to raise awareness.

Research

We raise funds for research to find better treatments and a cure. Click here to read about RSDSA's current funded research grants.

Education

We provide webinars and conferences to learn about the latest treatment options. We have two accredited medical online courses for doctors and nurses to learn more about adult and pediatric CRPS.