Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

RSDSA gives those affected by CRPS/RSD education, advocacy and hope! From signs & symptoms, to diagnosis, to living with CRPS/RSD long term, RSDSA has information for adults and youth living with this painful and debilitating condition – as well as for their families and caregivers. RSDSA raises funds for research to find better treatments – and a cure – for CRPS/RSD. RSDSA’s does provide the education and support that helps with pain management. We do also support and fund research, but the real objective is to encourage individuals with CRPS/RSD to take positive control of their illness and enhance their overall well- being.

Zoe's Zoomalong Virtual Camp Presented by RSDSA & TCAPP

Six sessions of hands-on fun and games, creating, building, and cooking for children ages 5-17.

  • Limit is 10 children, it is first come-first served.
  • Children must be available for all six sessions.
  • Camp Schedule: August 9, 10, 11 and August 16, 17, 18th at 1:00pm. All times are Eastern Daylight Time.
  • Supplies and a camp t-shirt are included.
  • Cost: $25 refundable when your child attends all six sessions.

Deadline Sunday, July 31, 2022.

Activity supplies included - will be shipped to the camper.

Each session will be led by an expert instructor who will guide your camper and their peers through engaging activities. 

 

Lego Masters

Challenge 

 

August 9

1:00pm 

TBD

 

August 10

1:00pm 

Art Therapy

Mask Making

 

August 11

1:00pm 

TBD

 

August 16

5:00pm

 TBD 

 

 August 17  

1:00pm 

 TBD

 

 August 18 

1:00pm
Register Here

The Coalition Against Pediatric Pain (TCAPP)

TCAPPlogo-284x125.pngBecause no child should live in pain

TCAPP is a national non-profit committed to improving quality of life for children living with chronic pain from rare diseases.  

TCAPP was founded by Mothers of  Children  who are effected by a chronic neuropathic pain disease. All of the founding families’ children suffer from CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy) and many suffer from multiple pain conditions, such as Ehlers-Danlos Sydrome (Hypermobility Syndrome), muscle spasms, migraines, abdominal migraines, Postural Orthostatic Tachycardia Syndrome and painful Gastrointestinal issues.

Zoe's Heroes

Camp Sponsors

Mission: raise awareness and money for pediatric CRPS to fund vetted treatment & research projects and to provide financial assistance for treatments.