The ECD Patient & Family Gathering (PFG) will be held in Birmingham, AL on April 29-30, 2026. We hope you will join us!
ECD patients, family members, and medical professionals will gather to share and learn more about Erdheim-Chester Disease (ECD).
Top ECD-knowledgeable physicians from around the world will provide informational presentations regarding disease management strategies and research updates. Patients and families will become more educated about ECD, helping them become stronger advocates. In addition to learning opportunities, the patients and their families will enjoy fellowship time.
Patients and family members report leaving past gatherings with greater confidence in managing their disease and feeling significantly more supported. Medical professionals find the opportunity to interact directly with patients and family members to be inspiring and a great learning opportunity.
Please NOTE: Register before 1 February to take advantage of the early bird discount! Save $100 and register for only $100.
About This Event
The ECD Patient & Family Gathering (PFG) will be held in Birmingham, AL on April 29-30, 2026. We hope you will join us!
ECD patients, family members, and medical professionals will gather to share and learn more about Erdheim-Chester Disease (ECD).
Top ECD-knowledgeable physicians from around the world will provide informational presentations regarding disease management strategies and research updates. Patients and families will become more educated about ECD, helping them become stronger advocates. In addition to learning opportunities, the patients and their families will enjoy fellowship time.
Patients and family members report leaving past gatherings with greater confidence in managing their disease and feeling significantly more supported. Medical professionals find the opportunity to interact directly with patients and family members to be inspiring and a great learning opportunity.
Please NOTE: Register before 1 February to take advantage of the early bird discount! Save $100 and register for only $100.
Getting There
Marnix E. Heersink Conference Center, University of Alabama at Birmingham
1670 University Blvd
Birmingham, Alabama 35233
United States