Hilton Washington DC Capitol Hill (Used to be called the Washington Court Hotel)
525 New Jersey Ave NW
Washington, District of Columbia 20001
United States
Add to Calendar
07/14/2023 08:00:00 AM07/16/2023 05:00:00 PMAmerica/New_York2023 CJD Foundation Family Conference The CJD Foundation's Family Conference, held in Washington, D.C., brings together prion disease experts and families affected by prion disease.
Friday, we'll host family workshops. Saturday and Sunday, we’ll learn about the latest scientific discoveries. We invite scientists conducting new and promising prion disease research to speak to our families about their work. We’ll also hear about the work of the CJD Foundation, the National Prion Disease Pathology Surveillance Center, and the Centers for Disease Control and Prevention.
Monday is devoted to visiting your state representatives on Capitol Hill. We set up appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to make our voices heard and to request continued funding for prion disease surveillance.
Hilton Washington DC Capitol Hill (Used to be called the Washington Court Hotel) 525 New Jersey Ave NW Washington, District of Columbia 20001
About this Event
The CJD Foundation's Family Conference, held in Washington, D.C., brings together prion disease experts and families affected by prion disease.
Friday, we'll host family workshops. Saturday and Sunday, we’ll learn about the latest scientific discoveries. We invite scientists conducting new and promising prion disease research to speak to our families about their work. We’ll also hear about the work of the CJD Foundation, the National Prion Disease Pathology Surveillance Center, and the Centers for Disease Control and Prevention.
Monday is devoted to visiting your state representatives on Capitol Hill. We set up appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to make our voices heard and to request continued funding for prion disease surveillance.
About this Event
The CJD Foundation's Family Conference, held in Washington, D.C., brings together prion disease experts and families affected by prion disease.
Friday, we'll host family workshops. Saturday and Sunday, we’ll learn about the latest scientific discoveries. We invite scientists conducting new and promising prion disease research to speak to our families about their work. We’ll also hear about the work of the CJD Foundation, the National Prion Disease Pathology Surveillance Center, and the Centers for Disease Control and Prevention.
Monday is devoted to visiting your state representatives on Capitol Hill. We set up appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to make our voices heard and to request continued funding for prion disease surveillance.
What You'll Learn at the CJD Foundation Family Conference
The CJD Foundation Family Conference offers families impacted by prion disease the opportunity to connect with one another and feel part of a community.
Over two days, you'll hear from grant recipients about their research, see how CJD Foundation programs are working for you, and learn about advocacy channels.
Agenda Overview
The full agenda will be released in the spring. This high-level overview is to give you a sense of the sessions offered.
Friday: 12:00 - 5:00pm
Registration and Check In
Workshops for Families Affected by Sporadic and Genetic Prion Disease
Prion Disease Overview
Bereavement Workshop
Welcome Reception from 6:00 - 7:30pm
Day 2: 8:30am - 5:00pm
Registration and Check In
Breakfast and Welcome
Keynote Address
Research Grant Recipients Presentations and Panels
Moving Roundtables
Dinner Banquet at 7:00pm
Day 3: 8:30am – 1:00pm
Breakfast and Welcome
The CJD International Support Alliance
CJD Foundation Grants Program
National Prion Disease Pathology Surveillance Center (NPDPSC) Report
Centers for Disease Control and Prevention (CDC) Report
Advocacy Update
Getting There
Hilton Washington DC Capitol Hill (Used to be called the Washington Court Hotel)
525 New Jersey Ave NW
Washington, District of Columbia 20001
United States
Hotel reservations are not included in your registration and must be made directly with Hilton Washington DC Capitol Hill. on your own. We have reserved a limited block of rooms. Reserve your room early to be guaranteed a room.
Hilton Washington DC Capitol Hill (Used to be called the Washington Court Hotel)
525 New Jersey Ave NW
Washington, District of Columbia 20001
United States
Add to Calendar
07/14/2023 08:00:00 AM07/16/2023 05:00:00 PMAmerica/New_York2023 CJD Foundation Family Conference The CJD Foundation's Family Conference, held in Washington, D.C., brings together prion disease experts and families affected by prion disease.
Friday, we'll host family workshops. Saturday and Sunday, we’ll learn about the latest scientific discoveries. We invite scientists conducting new and promising prion disease research to speak to our families about their work. We’ll also hear about the work of the CJD Foundation, the National Prion Disease Pathology Surveillance Center, and the Centers for Disease Control and Prevention.
Monday is devoted to visiting your state representatives on Capitol Hill. We set up appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to make our voices heard and to request continued funding for prion disease surveillance.
Hilton Washington DC Capitol Hill (Used to be called the Washington Court Hotel) 525 New Jersey Ave NW Washington, District of Columbia 20001
$225.00 Early Bird Registration now through Friday, April 14 at 11:59pm EST. Registration will increase to $250.00 on Saturday, April 15.
Registration closes on Friday, July 7 at 12:00am EST.
