Presented by The CJD Foundation

2023 CJD Foundation Family Conference

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About this Event

The CJD Foundation's Family Conference, held in Washington, D.C., brings together prion disease experts and families affected by prion disease.

Friday, we'll host family workshops. Saturday and Sunday, we’ll learn about the latest scientific discoveries. We invite scientists conducting new and promising prion disease research to speak to our families about their work. We’ll also hear about the work of the CJD Foundation, the National Prion Disease Pathology Surveillance Center, and the Centers for Disease Control and Prevention.

Monday is devoted to visiting your state representatives on Capitol Hill. We set up appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to make our voices heard and to request continued funding for prion disease surveillance.

About this Event

The CJD Foundation's Family Conference, held in Washington, D.C., brings together prion disease experts and families affected by prion disease.

Friday, we'll host family workshops. Saturday and Sunday, we’ll learn about the latest scientific discoveries. We invite scientists conducting new and promising prion disease research to speak to our families about their work. We’ll also hear about the work of the CJD Foundation, the National Prion Disease Pathology Surveillance Center, and the Centers for Disease Control and Prevention.

Monday is devoted to visiting your state representatives on Capitol Hill. We set up appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to make our voices heard and to request continued funding for prion disease surveillance.

What You'll Learn at the CJD Foundation Family Conference

The CJD Foundation Family Conference offers families impacted by prion disease the opportunity to connect with one another and feel part of a community.

Over two days, you'll hear from grant recipients about their research, see how CJD Foundation programs are working for you, and learn about advocacy channels.

Agenda Overview

The full agenda will be released in the spring. This high-level overview is to give you a sense of the sessions offered. 

Friday: 12:00 - 5:00pm

  • Registration and Check In
  • Workshops for Families Affected by Sporadic and Genetic Prion Disease
  • Prion Disease Overview
  • Bereavement Workshop
  • Welcome Reception from 6:00 - 7:30pm

Day 2: 8:30am - 5:00pm

  • Registration and Check In
  • Breakfast and Welcome
  • Keynote Address
  • Research Grant Recipients Presentations and Panels
  • Moving Roundtables
  • Dinner Banquet at 7:00pm

Day 3: 8:30am – 1:00pm

  • Breakfast and Welcome
  • The CJD International Support Alliance
  • CJD Foundation Grants Program
  • National Prion Disease Pathology Surveillance Center (NPDPSC) Report
  • Centers for Disease Control and Prevention (CDC) Report
  • Advocacy Update

Getting There

Hilton Washington DC Capitol Hill (Used to be called the Washington Court Hotel)
525 New Jersey Ave NW
Washington, District of Columbia 20001
United States

Hotel Reservations

Hotel reservations are not included in your registration and must be made directly with Hilton Washington DC Capitol Hill. on your own. We have reserved a limited block of rooms. Reserve your room early to be guaranteed a room. 

To reserve your room, visit the Hilton Washington DC Capitol Hill's website: https://book.passkey.com/go/cjdfoundation2023

Or call: 1-800-HILTONS.

$225.00 Early Bird Registration now through Friday, April 14 at 11:59pm EST. Registration will increase to $250.00 on Saturday, April 15.

Registration closes on Friday, July 7 at 12:00am EST.

Download and fill out this registration form if you do not want to register online.

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