Bridging the Gaps, Together

For years, families affected by TBRS have helped us search for answers. Today, those answers are beginning to point us toward something more: the possibility of better care, meaningful interventions, and treatments that could change lives.

Bridging the Gaps, Together

For years, families affected by TBRS have helped us search for answers. Today, those answers are beginning to point us toward something more: the possibility of better care, meaningful interventions, and treatments that could change lives.

Bridging the Gaps, Together

People living with Tatton Brown Rahman Syndrome are still waiting for treatments and expert care that could change their lives. Together, our community created a research roadmap, and this year we updated it with everything we’ve learned. Now we need your help to put it into action.

Help us raise $60,000 by December 31 to improve clinical care and accelerate research toward treatments.

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$11.04

Bridging the Gaps, Together

For years, families affected by TBRS have helped us search for answers. Today, those answers are beginning to point us toward something more: the possibility of better care, meaningful interventions, and treatments that could change lives.

Bridging the Gaps, Together

For years, families affected by TBRS have helped us search for answers. Today, those answers are beginning to point us toward something more: the possibility of better care, meaningful interventions, and treatments that could change lives.

Bridging the Gaps, Together

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