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03/02/2026 05:00:00 PM03/03/2026 04:00:00 PMAmerica/New_YorkCJD Advocacy Day 2026Join us for CJD Advocacy Day in Washington DC on March 2-3, 2026.
Why visit Capitol Hill in March?
Maximize the impact of your story! Meeting with your legislative offices before the Appropriations bills are finalized means you have a chance to:
Educate your legislator about how CJD impacts families in their district
Share the CJD community’s legislative requests with them, including the importance of CJD surveillance and research funding
Do this before the bills for the year’s spending are drafted
Your voice is crucial in raising awareness of CJD and what needs to be done to make a difference!
What do you need to do?
Register with the CJD Foundation by clicking the Register button on this page.
Deadline: Friday, February 13 at 12:00 pm ET
Reserve your hotel room: Visit the Hilton Washington DC Capitol Hill's website: https://book.passkey.com/gt/220880217?gtid=605cfae973626701c552e6f324ff573a or call 1-800-HILTONS. The last day to make your reservations is Wednesday, January 28, 2026 at 11:59 pm ET.
Join us for an orientation session around 5:00 pm on Monday, March 2
Participate in meetings on Capitol Hill on Tuesday, March 3
The CJD Foundation will:
Schedule all meetings
Provide you with handouts
Provide training, information, and talking points for the meetings.
Send an experienced advocate with you for your visits
This visit will have real impact in encouraging funding for prion disease research and surveillance, and we hope you will join us! To learn more about CJD Advocacy Day 2026, please call us at 800-659-1991 or email help@cjdfoundation.org.
Hilton Washington DC Capitol Hill 525 New Jersey Ave NW Washington, District of Columbia 20001
CJD Advocacy Day 2026
Join us for CJD Advocacy Day in Washington DC on March 2-3, 2026.
Why visit Capitol Hill in March?
Maximize the impact of your story! Meeting with your legislative offices before the Appropriations bills are finalized means you have a chance to:
Educate your legislator about how CJD impacts families in their district
Share the CJD community’s legislative requests with them, including the importance of CJD surveillance and research funding
Do this before the bills for the year’s spending are drafted
Your voice is crucial in raising awareness of CJD and what needs to be done to make a difference!
What do you need to do?
Register with the CJD Foundation by clicking the Register button on this page.
Join us for an orientation session around 5:00 pm on Monday, March 2
Participate in meetings on Capitol Hill on Tuesday, March 3
The CJD Foundation will:
Schedule all meetings
Provide you with handouts
Provide training, information, and talking points for the meetings.
Send an experienced advocate with you for your visits
This visit will have real impact in encouraging funding for prion disease research and surveillance, and we hope you will join us! To learn more about CJD Advocacy Day 2026, please call us at 800-659-1991 or email help@cjdfoundation.org.
CJD Advocacy Day 2026
Join us for CJD Advocacy Day in Washington DC on March 2-3, 2026.
Why visit Capitol Hill in March?
Maximize the impact of your story! Meeting with your legislative offices before the Appropriations bills are finalized means you have a chance to:
Educate your legislator about how CJD impacts families in their district
Share the CJD community’s legislative requests with them, including the importance of CJD surveillance and research funding
Do this before the bills for the year’s spending are drafted
Your voice is crucial in raising awareness of CJD and what needs to be done to make a difference!
What do you need to do?
Register with the CJD Foundation by clicking the Register button on this page.
Join us for an orientation session around 5:00 pm on Monday, March 2
Participate in meetings on Capitol Hill on Tuesday, March 3
The CJD Foundation will:
Schedule all meetings
Provide you with handouts
Provide training, information, and talking points for the meetings.
Send an experienced advocate with you for your visits
This visit will have real impact in encouraging funding for prion disease research and surveillance, and we hope you will join us! To learn more about CJD Advocacy Day 2026, please call us at 800-659-1991 or email help@cjdfoundation.org.
Agenda
Monday, March 2
Morning/Afternoon Arrival, Check-in with CJDF Team in the Registration/Hospitality Room (Room to Be Announced)
5:00 pm - 7:00 pm Orientation and Dinner
Tuesday, March 3
Morning-Afternoon Meetings on Capitol Hill To be scheduled by CJDF
Evening Departure
Note: For those who are only available on Monday, it is possible that some meetings can be scheduled on that day as well.
Hotel Reservations
Hotel reservations must be made directly with Hilton Washington DC Capitol Hill. We have a discounted block of rooms at the Hilton Washington DC Capitol Hill available on a first-come, first-served basis.
Add to Calendar
03/02/2026 05:00:00 PM03/03/2026 04:00:00 PMAmerica/New_YorkCJD Advocacy Day 2026Join us for CJD Advocacy Day in Washington DC on March 2-3, 2026.
Why visit Capitol Hill in March?
Maximize the impact of your story! Meeting with your legislative offices before the Appropriations bills are finalized means you have a chance to:
Educate your legislator about how CJD impacts families in their district
Share the CJD community’s legislative requests with them, including the importance of CJD surveillance and research funding
Do this before the bills for the year’s spending are drafted
Your voice is crucial in raising awareness of CJD and what needs to be done to make a difference!
What do you need to do?
Register with the CJD Foundation by clicking the Register button on this page.
Deadline: Friday, February 13 at 12:00 pm ET
Reserve your hotel room: Visit the Hilton Washington DC Capitol Hill's website: https://book.passkey.com/gt/220880217?gtid=605cfae973626701c552e6f324ff573a or call 1-800-HILTONS. The last day to make your reservations is Wednesday, January 28, 2026 at 11:59 pm ET.
Join us for an orientation session around 5:00 pm on Monday, March 2
Participate in meetings on Capitol Hill on Tuesday, March 3
The CJD Foundation will:
Schedule all meetings
Provide you with handouts
Provide training, information, and talking points for the meetings.
Send an experienced advocate with you for your visits
This visit will have real impact in encouraging funding for prion disease research and surveillance, and we hope you will join us! To learn more about CJD Advocacy Day 2026, please call us at 800-659-1991 or email help@cjdfoundation.org.
Hilton Washington DC Capitol Hill 525 New Jersey Ave NW Washington, District of Columbia 20001
