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Presented by ECD Global Alliance

ECD Barcelona Patient & Family Gathering

About This Event

The ECD Patient & Family Gathering (PFG)  will be held in Barcelona, Spain on 26 May, 2025.  We hope you will join us!

ECD patients, family members, and medical professionals will gather to share and learn more about Erdheim-Chester Disease (ECD).

Top ECD-knowledgeable physicians from around the world will provide informational presentations regarding disease management strategies and research updates. Patients and families will become more educated about ECD, helping them become stronger advocates. In addition to learning opportunities, the patients and their families will enjoy fellowship time. 

Patients and family members report leaving past gatherings with greater confidence in managing their disease and feeling significantly more supported.  Medical professionals find the opportunity to interact directly with patients and family members to be inspiring and a great learning opportunity.

Please NOTE:  Register before 28 February to take advantage of the early bird discount!  Save 100 USD and register for only 100USD.

About This Event

The ECD Patient & Family Gathering (PFG)  will be held in Barcelona, Spain on 26 May, 2025.  We hope you will join us!

ECD patients, family members, and medical professionals will gather to share and learn more about Erdheim-Chester Disease (ECD).

Top ECD-knowledgeable physicians from around the world will provide informational presentations regarding disease management strategies and research updates. Patients and families will become more educated about ECD, helping them become stronger advocates. In addition to learning opportunities, the patients and their families will enjoy fellowship time. 

Patients and family members report leaving past gatherings with greater confidence in managing their disease and feeling significantly more supported.  Medical professionals find the opportunity to interact directly with patients and family members to be inspiring and a great learning opportunity.

Please NOTE:  Register before 28 February to take advantage of the early bird discount!  Save 100 USD and register for only 100USD.

Getting There

Bellvitge University Hospital
Carrer de la Feixa Llarga
l'Hospitalet de Llobregat, Barcelona 08907
Spain