Location
525 New Jersey Ave NW
Washington, District of Columbia 20001
United States
Date & Time
CJD Advocacy Day 2025
Join us for CJD Advocacy Day in Washington DC on March 3-4, 2025.
Why visit Capitol Hill in March?
Maximize the impact of your story! Meeting with your legislative offices before the Appropriations bills are finalized means you have a chance to:
- Educate your legislator about how CJD impacts families in their district
- Share the CJD community’s legislative requests with them, including the importance of CJD surveillance and research funding
- Do this before the bills for the year’s spending are drafted
Your voice is crucial in raising awareness of CJD and what needs to be done to make a difference!
What do you need to do?
- Register with the CJD Foundation by clicking the Register button on this page.
- Deadline: Wednesday, February 12 at 12:00 pm ET
- Reserve your hotel room: Visit the Hilton Washington DC Capitol Hill's website: https://book.passkey.com/go/cjdadvocacyday or call 1-800-HILTONS.
- Join us for an orientation session around 5 pm on Monday, March 3
- Participate in meetings on Capitol Hill on Tuesday, March 4
The CJD Foundation will:
- Schedule all meetings
- Provide you with handouts
- Provide training, information, and talking points for the meetings.
- Send an experienced advocate with you for your visits
This visit will have real impact in encouraging funding for prion disease research and surveillance, and we hope you will join us! To learn more about CJD Advocacy Day 2025, please call us at 800-659-1991 or email help@cjdfoundation.org.
CJD Advocacy Day 2025
Join us for CJD Advocacy Day in Washington DC on March 3-4, 2025.
Why visit Capitol Hill in March?
Maximize the impact of your story! Meeting with your legislative offices before the Appropriations bills are finalized means you have a chance to:
- Educate your legislator about how CJD impacts families in their district
- Share the CJD community’s legislative requests with them, including the importance of CJD surveillance and research funding
- Do this before the bills for the year’s spending are drafted
Your voice is crucial in raising awareness of CJD and what needs to be done to make a difference!
What do you need to do?
- Register with the CJD Foundation by clicking the Register button on this page.
- Deadline: Wednesday, February 12 at 12:00 pm ET
- Reserve your hotel room: Visit the Hilton Washington DC Capitol Hill's website: https://book.passkey.com/go/cjdadvocacyday or call 1-800-HILTONS.
- Join us for an orientation session around 5 pm on Monday, March 3
- Participate in meetings on Capitol Hill on Tuesday, March 4
The CJD Foundation will:
- Schedule all meetings
- Provide you with handouts
- Provide training, information, and talking points for the meetings.
- Send an experienced advocate with you for your visits
This visit will have real impact in encouraging funding for prion disease research and surveillance, and we hope you will join us! To learn more about CJD Advocacy Day 2025, please call us at 800-659-1991 or email help@cjdfoundation.org.
Agenda
Monday, March 3
Morning/Afternoon Arrival, Check-in with CJDF Team in the Registration/Hospitality Room (Room to Be Announced)
5:00 pm - 7:00 pm Orientation and Dinner
Tuesday, March 4
Morning-Afternoon Meetings on Capitol Hill
To be scheduled by CJDF
Evening Departure
Note: For those who are only available on Monday, it is possible that some meetings can be scheduled on that day as well.
Hotel Reservations
Hotel reservations must be made directly with Hilton Washington DC Capitol Hill. We have reserved a block of rooms. Reserve your room by Wednesday, January 31 at 11:59 pm ET.
Getting There
Hilton Washington DC Capitol Hill
525 New Jersey Ave NW
Washington, District of Columbia 20001
United States
Location
525 New Jersey Ave NW
Washington, District of Columbia 20001
United States