Phelan-McDermid Syndrome Foundation is a 501(c)(3) charitable organization. A copy of the official registration and financial information may be obtained from the division of consumer services by calling toll-free 1-800-HELP-FLA (1-800-435-7352) within the state or at www.FloridaConsumerHelp.com. Registration does not imply endorsement, approval, or recommendation by the state. FL State Registration number: CH31971. Fed Tax ID#04-3673104. For a complete explanation of all other state information, visit www.pmsf.org.

PMSF Donation Acknowledgment, Refund and Cancellation Policy: It is the policy of PMSF to acknowledge all donations regardless of amount. Please contact shira@pmsf.org if you do not receive an acknowledgment via post or email. If you have a problem with the online donation form, email shira@pmsf.org. Cancellations: Transactions may be canceled if PMSF is notified by email within 24 hours of the donation at shira@pmsf.org. PMSF does not cancel or refund donations after 24 hours. 

PMSF Donor Privacy Policy: The Phelan-McDermid Syndrome Foundation (PMSF) is committed to respecting the privacy of our donors. All information concerning donors or prospective donors (including their names, physical addresses, email addresses, telephone numbers, and the amount of their gift, etc.) shall be kept strictly confidential by Phelan-McDermid Syndrome Foundation and its staff and board. PMSF stores donor information in a password protected donor database and uses donor data to maintain records of donations, send acknowledgements, send e-newsletters, and various other fundraising campaigns and appeals. At time of donation, donors may opt out of receiving future solicitations from PMSF. Any outside contractors/consultants must be given express permission from the Phelan-McDermid Syndrome Foundation’s Chief Executive Officer to access donor information, are contractually obligated to treat donor information with confidentiality, and are prohibited from transferring donor information elsewhere. Contractors/consultants will be required to sign a confidentiality agreement and disclose any conflicts of interest. Use of donor information will only be used to further the mission of PMSF. Phelan-McDermid Syndrome Foundation will not sell, rent, trade, or transfer your personal information to outside organizations. If you have comments or questions about Phelan-McDermid Syndrome Foundation’s donor privacy policy, please email info@pmsf.org or call 941-485-8000.