We are pleased to announce that the FamilieSCN2A Foundation will host an Externally-led Patient-Focused Drug Development (EL-PFDD) meeting on Friday, October 23, 2026, in Washington, DC.
This public meeting will elevate the critical patient and family voice to help inform future drug development efforts and engage key stakeholders, including the U.S. Food and Drug Administration (FDA). The EL-PFDD is an important part of the Foundation’s strategy to advance patient-centered drug development for SCN2A-related disorders.
In-person seating is limited. Please reserve an in-person spot only if you are confident you will be able to attend in Washington, D.C. If your plans change, please let us know as soon as possible. The meeting will be held in person and livestreamed globally.
Families affected by SCN2A-related disorders around the world will have opportunities to participate and share their lived experiences.
Please note:EL-PFDD Registration does not include hotel room reservations. On-site rooms will fill quickly, so we encourage you to book your hotel accommodations as the room block becomes available. We will reach out with room block information soon.
About This Event
We are pleased to announce that the FamilieSCN2A Foundation will host an Externally-led Patient-Focused Drug Development (EL-PFDD) meeting on Friday, October 23, 2026, in Washington, DC.
This public meeting will elevate the critical patient and family voice to help inform future drug development efforts and engage key stakeholders, including the U.S. Food and Drug Administration (FDA). The EL-PFDD is an important part of the Foundation’s strategy to advance patient-centered drug development for SCN2A-related disorders.
In-person seating is limited. Please reserve an in-person spot only if you are confident you will be able to attend in Washington, D.C. If your plans change, please let us know as soon as possible. The meeting will be held in person and livestreamed globally.
Families affected by SCN2A-related disorders around the world will have opportunities to participate and share their lived experiences.
Please note:EL-PFDD Registration does not include hotel room reservations. On-site rooms will fill quickly, so we encourage you to book your hotel accommodations as the room block becomes available. We will reach out with room block information soon.
Location
Dupont Circle
Washington, District of Columbia 20009
United States
