Frankie left his earthly body at ten years old on September 12, 2019, but we continue to feel his giving energy fuel us to help families like ours. It took 4 years and our oldest child having a cardiac arrest to learn our family has CPVT. With the help of SADS, we received a full education of our condition. We learned that SADS funds research, awareness, family support, and medical education. Today, SADS is helping us ensure Frankie’s memory and spirit of giving live on.
Live Like Frankie Hat Fundraiser
Frankie left his earthly body at ten years old on September 12, 2019, but we continue to feel his giving energy fuel us to help families like ours. It took 4 years and our oldest child having a cardiac arrest to learn our family has CPVT. With the help of SADS, we received a full education of our condition. We learned that SADS funds research, awareness, family support, and medical education. Today, SADS is helping us ensure Frankie’s memory and spirit of giving live on.