Presented by National Neutropenia Network, Inc.

2027 National Neutropenia Network Family Retreat

Registration ends Sunday, 06/06/2027 11:59pm EST

About This Event

We are excited to be able to bring our Neutropenia community together again this summer! We may be small as a rare disease, but together we are one big family! 

We are looking forward to providing an extraordinary experience. Our goal is to help equip you with the skills, knowledge and support you need to manage life with Chronic Neutropenia.  These in-person retreats have proven to be invaluable, leaving a lasting impression on the lives of individuals with chronic neutropenia and their families.  We look forward to seeing you!

What to Expect:

  • The opportunity to connect with other individuals/families who are living with chronic Neutropenia.
  • Presentations from Neutropenia experts and professionals with topics covering chronic Neutropenia in general, management, up to date research findings and ongoing clinical studies, and so much more.
  • Breakout sessions to address the different types of chronic Neutropenia and specific topics; testimony to personal stories of those living with Neutropenia; and more!
  • Kids Camp for all kids in attendance ages 4-16 brought to you by The Ella Jewell Foundation and coordinated by professional event planner Kristin McGuinness, her Sparklicious staff, and volunteers.  Kids Camp will be in session Friday afternoon and all day Saturday during the presentations and break out sessions for adults (kids will join parents for all meals).  We are excited for the kids to get to know each other and enjoy all the fun activities that Kristin and her staff have planned for the weekend!
    • If you have a 17 year old traveling with you, we will contact you to determine how they can best experience the retreat.
    • Please note that children under the age of four will not have an organized group to attend nor childcare available. In the past, families have chosen to bring additional family members to assist with childcare in order to attend sessions.

Registration fees cover all presentations, handouts, children and teen programs, t-shirts, Friday dinner reception, Saturday breakfast/lunch/dinner reception, and Sunday breakfast. Outside food and beverage cannot be brought into the event spaces.

Hotel Information

The retreat will be held at Graduate by Hilton Cincinnati. Registration does not include your hotel accommodations. Please register sepeartely. Our group discount provides rooms with two queen beds or one king bed at $165 per night (plus taxes and fees). Group rate is available July 14-18 for those who wish to arrive early or stay late. Use the link on the website to reserve your room and for more information.

About This Event

We are excited to be able to bring our Neutropenia community together again this summer! We may be small as a rare disease, but together we are one big family! 

We are looking forward to providing an extraordinary experience. Our goal is to help equip you with the skills, knowledge and support you need to manage life with Chronic Neutropenia.  These in-person retreats have proven to be invaluable, leaving a lasting impression on the lives of individuals with chronic neutropenia and their families.  We look forward to seeing you!

What to Expect:

  • The opportunity to connect with other individuals/families who are living with chronic Neutropenia.
  • Presentations from Neutropenia experts and professionals with topics covering chronic Neutropenia in general, management, up to date research findings and ongoing clinical studies, and so much more.
  • Breakout sessions to address the different types of chronic Neutropenia and specific topics; testimony to personal stories of those living with Neutropenia; and more!
  • Kids Camp for all kids in attendance ages 4-16 brought to you by The Ella Jewell Foundation and coordinated by professional event planner Kristin McGuinness, her Sparklicious staff, and volunteers.  Kids Camp will be in session Friday afternoon and all day Saturday during the presentations and break out sessions for adults (kids will join parents for all meals).  We are excited for the kids to get to know each other and enjoy all the fun activities that Kristin and her staff have planned for the weekend!
    • If you have a 17 year old traveling with you, we will contact you to determine how they can best experience the retreat.
    • Please note that children under the age of four will not have an organized group to attend nor childcare available. In the past, families have chosen to bring additional family members to assist with childcare in order to attend sessions.

Registration fees cover all presentations, handouts, children and teen programs, t-shirts, Friday dinner reception, Saturday breakfast/lunch/dinner reception, and Sunday breakfast. Outside food and beverage cannot be brought into the event spaces.

Hotel Information

The retreat will be held at Graduate by Hilton Cincinnati. Registration does not include your hotel accommodations. Please register sepeartely. Our group discount provides rooms with two queen beds or one king bed at $165 per night (plus taxes and fees). Group rate is available July 14-18 for those who wish to arrive early or stay late. Use the link on the website to reserve your room and for more information.