Presented by Pulmonary Fibrosis Foundation

PFF Hill Day 2024 Registration

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Registration ends today at 11:59pm CST

About This Event

Who:

PFF Hill Day welcomes patients, caregivers, family members, people who have lost a loved one to pulmonary fibrosis, lung transplant recipients, and healthcare providers to participate. Please note that PFF Hill Day is not open to industry partners. 

About:

PFF Hill Day 2024 is Wednesday, March 6! Meet with your legislators and congressional staff via Zoom to advocate for pulmonary fibrosis research and supplemental oxygen reform.

Improve patient’s access to supplemental oxygen

  • In 2024, the PFF is focused on asking members of Congress to change the way that oxygen is covered for patients who have Medicare. Many patients are currently unable to access the type of oxygen and the appropriate services that they need. We are asking Congress to pass legislation that would fix these issues. In partnership with over 20 other patient, professional, and industry groups, the PFF is advocating for this change and needs your voice to emphasize this issue.

  • Learn more about the Four Pillars for Oxygen Reform that would provide the basis of legislation.

Fund PF research through the National Institutes of Health and the Congressionally Directed Medical Research Programs

  • We need elected officials to understand why it is so important for PF research to receive robust federal funding. PF research receives tens of millions of dollars of federal funding each year. Meet with your elected officials and their staff to ensure funding for research continues.

You will have the opportunity to educate the congressional staff on pulmonary fibrosis, briefly share your experience as a part of the PF community, and provide an understanding on why we need their support on these important issues. Make the voice of the pulmonary fibrosis community heard on Capitol Hill by participating in PFF Hill Day. Training will be provided the week before PFF Hill Day and no previous experience with advocacy is necessary.

To participate in PFF Hill Day, you must be available for scheduled meetings between 9:00 a.m. and 5:00 p.m. in your time zone on March 6. All meetings will be held virtually on Zoom. Please only apply if you are available to participate in Hill Day on March 6 between 9:00 a.m. and 5:00 p.m. in your time zone.

The fee to participate in PFF Hill Day is $25. Scholarships are available to cover the participation fee. Please email advocacy@pulmonaryfibrosis.org to inquire about receiving a scholarship.

More information can be found in the PFF Hill Day 2024 FAQ here.  

Deadline to register is Thursday, February 22, 2024.

Refund policy: A full refund is available up to one week before the event, through Wednesday, February 28, 2024. After February 28, a refund can no longer be offered.

About This Event

Who:

PFF Hill Day welcomes patients, caregivers, family members, people who have lost a loved one to pulmonary fibrosis, lung transplant recipients, and healthcare providers to participate. Please note that PFF Hill Day is not open to industry partners. 

About:

PFF Hill Day 2024 is Wednesday, March 6! Meet with your legislators and congressional staff via Zoom to advocate for pulmonary fibrosis research and supplemental oxygen reform.

Improve patient’s access to supplemental oxygen

  • In 2024, the PFF is focused on asking members of Congress to change the way that oxygen is covered for patients who have Medicare. Many patients are currently unable to access the type of oxygen and the appropriate services that they need. We are asking Congress to pass legislation that would fix these issues. In partnership with over 20 other patient, professional, and industry groups, the PFF is advocating for this change and needs your voice to emphasize this issue.

  • Learn more about the Four Pillars for Oxygen Reform that would provide the basis of legislation.

Fund PF research through the National Institutes of Health and the Congressionally Directed Medical Research Programs

  • We need elected officials to understand why it is so important for PF research to receive robust federal funding. PF research receives tens of millions of dollars of federal funding each year. Meet with your elected officials and their staff to ensure funding for research continues.

You will have the opportunity to educate the congressional staff on pulmonary fibrosis, briefly share your experience as a part of the PF community, and provide an understanding on why we need their support on these important issues. Make the voice of the pulmonary fibrosis community heard on Capitol Hill by participating in PFF Hill Day. Training will be provided the week before PFF Hill Day and no previous experience with advocacy is necessary.

To participate in PFF Hill Day, you must be available for scheduled meetings between 9:00 a.m. and 5:00 p.m. in your time zone on March 6. All meetings will be held virtually on Zoom. Please only apply if you are available to participate in Hill Day on March 6 between 9:00 a.m. and 5:00 p.m. in your time zone.

The fee to participate in PFF Hill Day is $25. Scholarships are available to cover the participation fee. Please email advocacy@pulmonaryfibrosis.org to inquire about receiving a scholarship.

More information can be found in the PFF Hill Day 2024 FAQ here.  

Deadline to register is Thursday, February 22, 2024.

Refund policy: A full refund is available up to one week before the event, through Wednesday, February 28, 2024. After February 28, a refund can no longer be offered.