PFF Hill Day 2026 Registration

Who:

PFF Hill Day welcomes patients, caregivers, lung transplant recipients, family members, people who have lost a loved one to pulmonary fibrosis (PF), and healthcare providers to participate. Please note that PFF Hill Day is not open to industry partners or individuals who live internationally from the United States.

About:

PFF Hill Day 2026 is Wednesday, March 4! Meet with your legislators and congressional staff via Zoom to advocate for pulmonary fibrosis research and supplemental oxygen reform. You will be asking for your members of Congress to do the following:

Fund PF research through the National Institutes of Health and the Congressionally Directed Medical Research Programs

• We need elected officials to understand why it is so important for PF research to receive robust federal funding. PF research receives tens of millions of dollars of federal funding each year. Meet with your elected officials and their staff to ensure funding for research continues.

Improve patients' access to supplemental oxygen

• In 2026, the PFF is focusing on the Supplemental Oxygen Access Reform (SOAR) Act by asking members of Congress to cosponsor this legislation which will change the way that oxygen is covered for patients who have Medicare. Many patients are currently unable to access the type of oxygen and the appropriate services that they need. We are asking Congress to pass legislation that would fix these issues. In partnership with over 30 other patient, professional, and industry groups, the PFF is advocating for this change and needs your voice to emphasize this issue.
• Learn more about supplemental oxygen, the challenges patients on Medicare face in accessing supplemental oxygen, and what the SOAR Act will do to address these challenges in the SOAR Act One Pager.

You will have the opportunity to educate congressional staff on pulmonary fibrosis and interstitial lung disease (ILD), briefly share your experience as a part of the PF and ILD community, and provide an understanding on why we need their support on these important issues. Make your voice heard on Capitol Hill and participate in PFF Hill Day! 

To participate in PFF Hill Day, you must be available for scheduled meetings between 9:00 a.m. and 5:00 p.m. in your time zone on March 4. Please only apply if you are available to participate in Hill Day on March 4 between 9:00 a.m. and 5:00 p.m. in your time zone. Most participants will be scheduled for 4-7 meetings of 30 minutes each throughout the day. Training will be provided on Wednesday, February 25, the week before PFF Hill Day. No previous experience with advocacy is necessary.

The fee to participate in PFF Hill Day is $25. Scholarships are available to cover the participation fee. Please email advocacy@pulmonaryfibrosis.org to inquire about receiving a scholarship.

Deadline to register is Wednesday, February 18, 2026.

More information can be found in the PFF Hill Day 2026 FAQ here.

Refund policy: A full refund is available up to one week before the event, through Wednesday, February 25, 2026. After February 25, a refund can no longer be offered.