Thursday, April 04, 2019
12:01am to 11:59pm
Join us on Thursday, April 4th, 2019, for our first mismatched shoe fundraiser!
Register for $10 to wear mismatched shoes (or socks - we understand not everyone can wear mismatched shoes all day!) to show support for VWM families all over the world. Snap a picture of your mismatched shoes or socks and tag us @vwmff and @samvsvwm on the day.
Why mismatched shoes? Sam Buck is an 8 year old boy who was diagnosed with VWM on April 4, 2013. Like most VWM kids, despite their disabilities, they are happy and full of personality. Sam loves expressing his personality through his clothing and wears mismatched shoes to school every day. Help us support Sam and all VWM kids on the 6th anniversary of his diagnosis by wearing your mismatched shoes or socks.
You can follow Sam's story on facebook, instagram and twitter @samvsvwm
Vanishing White Matter disease (VWM) is a very rare neurological condition that destroys myelin, the brain’s white matter. In doing so, it permanently affects transmission of brain signals to the rest of the body. VWM primarily affects children and is untreatable, incurable and terminal.
Money raised by the VWM Families Foundation funds VWM research projects and supports families living with VWM with critical expenses not covered by insurance.
Learn more about the VWM Families Foundation here. Follow us on facebook and instagram @vwmff and on twitter @VWMFamilies
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