Location
2905 Griffith Street
Charlotte, North Carolina 28203
United States
Date & Time
6:00pm EDT - 9:00pm EDT
About This Event
Please join us for a fun-filled evening playing mahjong hosted by Gift of GRACE - Grants, Resources And Continued Education! Mahjong with Meaning honors Grace Bensch, the daughter of Kaitlin and Jonathan Bensch, who was born with a rare disease. The event will benefit Ward’s Foundation and other local non-profits that help families with medically complex children.
Come enjoy friendly games, delicious refreshments, light bites, and the chance to win fabulous raffle prizes, all while making a meaningful impact!
EVENT AGENDA:
6:00pm: Arrival
6:30pm: Presentation
6:45pm-8:15pm: Play Mahjong!
8:30pm: Raffle and Prizes
GRACE'S STORY:
Grace Bensch, the daughter of Kaitlin and Jonathan Bensch, started having some developmental concerns around her first birthday. She began missing milestones and regressing in her physical abilities. After months of various tests and doctor appointments, they were finally given an answer to what was happening to Grace. She was diagnosed with an extremely rare genetic disorder called Infantile Neuroaxonal Dystrophy (INAD) on October 26, 2023. This neurodegenerative disease only affects about 150 children in the world, and it gives her a life expectancy of 5-10 years. Kaitlin and Jonathan have been blessed to be in Charlotte with so many helpful non-profit organizations, and in honor of Grace, they want to give back to those who have done so much for their family.
About This Event
Please join us for a fun-filled evening playing mahjong hosted by Gift of GRACE - Grants, Resources And Continued Education! Mahjong with Meaning honors Grace Bensch, the daughter of Kaitlin and Jonathan Bensch, who was born with a rare disease. The event will benefit Ward’s Foundation and other local non-profits that help families with medically complex children.
Come enjoy friendly games, delicious refreshments, light bites, and the chance to win fabulous raffle prizes, all while making a meaningful impact!
EVENT AGENDA:
6:00pm: Arrival
6:30pm: Presentation
6:45pm-8:15pm: Play Mahjong!
8:30pm: Raffle and Prizes
GRACE'S STORY:
Grace Bensch, the daughter of Kaitlin and Jonathan Bensch, started having some developmental concerns around her first birthday. She began missing milestones and regressing in her physical abilities. After months of various tests and doctor appointments, they were finally given an answer to what was happening to Grace. She was diagnosed with an extremely rare genetic disorder called Infantile Neuroaxonal Dystrophy (INAD) on October 26, 2023. This neurodegenerative disease only affects about 150 children in the world, and it gives her a life expectancy of 5-10 years. Kaitlin and Jonathan have been blessed to be in Charlotte with so many helpful non-profit organizations, and in honor of Grace, they want to give back to those who have done so much for their family.
Location
2905 Griffith Street
Charlotte, North Carolina 28203
United States
Date & Time
6:00pm EDT - 9:00pm EDT
Sponsors
Getting There
Norfolk Hall at Suffolk Punch South End
2905 Griffith Street
Charlotte, North Carolina 28203
United States