Date & Time
About This Event
Every family deserves the opportunity to access specialized Krabbe disease care, regardless of where they live or their financial circumstances.
This year, KrabbeConnect invites you to be part of something meaningful as we work to launch a new patient program designed to help families affected by Krabbe disease access specialized medical care.
While insurance may cover the medical appointment, the expenses associated with airfare, lodging, ground transportation, and meals often fall directly on families already navigating significant medical and financial challenges.
On average, KrabbeConnect receives approximately 15–20 requests each year from families needing financial assistance to travel for medical care. We believe the cost of getting to a specialist should never be the reason a family goes without the opportunity to seek specialized care.
Your Gift Can Help Bridge the Distance
We estimate that a four-day trip for a patient and caregiver can cost approximately $2,500 in travel-related expenses alone.
With 15–20 families requesting travel assistance each year, our goal is to raise $50,000 to help establish and sustain this much-needed program.
Introducing Our New Specialist Travel Assistance Program
Through this new initiative, KrabbeConnect hopes to help families travel to a Krabbe disease specialist at least once annually, if they choose.
These visits can provide important opportunities to review complex medications, undergo specialied testing, optimize a treatment plan, and participate in research studies.
Double Your Impact Through Our Year-End Match
This year, we are seeking generous partners to help make every donation go further through a year-end matching gift campaign.
With a dollar-for-dollar match, your contribution could have twice the impact, helping more families overcome the financial barriers that stand between them and specialized Krabbe disease care.
A $100 gift becomes $200. A $500 gift becomes $1,000. A $1,250 gift becomes $2,500 — potentially covering the estimated travel expenses for one family.
Matching opportunities will be available once matching commitments are secured and will be subject to the campaign's matching limit.
About This Event
Every family deserves the opportunity to access specialized Krabbe disease care, regardless of where they live or their financial circumstances.
This year, KrabbeConnect invites you to be part of something meaningful as we work to launch a new patient program designed to help families affected by Krabbe disease access specialized medical care.
While insurance may cover the medical appointment, the expenses associated with airfare, lodging, ground transportation, and meals often fall directly on families already navigating significant medical and financial challenges.
On average, KrabbeConnect receives approximately 15–20 requests each year from families needing financial assistance to travel for medical care. We believe the cost of getting to a specialist should never be the reason a family goes without the opportunity to seek specialized care.
Your Gift Can Help Bridge the Distance
We estimate that a four-day trip for a patient and caregiver can cost approximately $2,500 in travel-related expenses alone.
With 15–20 families requesting travel assistance each year, our goal is to raise $50,000 to help establish and sustain this much-needed program.
Introducing Our New Specialist Travel Assistance Program
Through this new initiative, KrabbeConnect hopes to help families travel to a Krabbe disease specialist at least once annually, if they choose.
These visits can provide important opportunities to review complex medications, undergo specialied testing, optimize a treatment plan, and participate in research studies.
Double Your Impact Through Our Year-End Match
This year, we are seeking generous partners to help make every donation go further through a year-end matching gift campaign.
With a dollar-for-dollar match, your contribution could have twice the impact, helping more families overcome the financial barriers that stand between them and specialized Krabbe disease care.
A $100 gift becomes $200. A $500 gift becomes $1,000. A $1,250 gift becomes $2,500 — potentially covering the estimated travel expenses for one family.
Matching opportunities will be available once matching commitments are secured and will be subject to the campaign's matching limit.