14th Annual Walk, 5k Run & Roll May 5, 2019

Evan's Awesome Team

May 5, 2019

Our Team Fundraising Page

Please join the Sisser family and Evan’s Awesome Team on Sunday, May 5th for the STAR Walk, 5K Run & Roll at Sherwood Island Park in Westport.  Be a part of our overly enthusiastic group as we celebrate everyone who shines at STAR. This year, I’m sharing the Personal Journey essay that I read at the STAR Speakers Luncheon in 2017.  I hope it conveys how important STAR has been, not just to Evan, but to our entire family. I'll always be grateful to STAR for teaching me to embrace a positive attitude. THANK YOU for supporting Evan's Awesome Team, and see you on the 5th!

 

From almost the moment my son Evan was born, he struggled to meet basic infant milestones.  By the time he was 7 months old it was suggested, “just to rule anything out,” that we take him for an MRI.  Three days later, at our follow up with the neurologist, Evan was diagnosed with severe cerebral palsy. I walked into the doctor’s office one person, and I walked out someone completely new.

My mom used to say. “Life is what happens when you’re busy making other plans,” and every time I heard her say that, I’d roll my eyes, because moms are weird.  Little did I know that a) that’s a John Lennon quote and my mom never gave him credit and b) nothing could be more true.

My husband Adrian and I became special needs parents seemingly overnight, and we were forced to confront our biggest fears.  We no longer cared if Evan excelled in school or where he went to college. Instead we worried about “failure to thrive,” feeding tubes and seizures.  We got a wheelchair van, a hospital bed and read everything we could about cerebral palsy.

I’m ashamed to admit that I didn’t want to begin STAR’s Birth to Three program.  I hated that Evan needed therapy and I hated that I, his mother, didn’t know what to do for him.  After all, Evan was my second child. It should have been easy. But everything I knew about caring for him needed an overhaul.

I’m standing here, years removed from those early days.  Evan is almost 7. But I remember them well, and you could say that Evan and I both got therapy from STAR. 

Evan’s therapists, Nancy, Beth, Debbie and Juliana brought sunshine into a house that was, at times very, very dark.  When all I could think was “He’ll never,” they said, “Let’s try.” When I proclaimed, “This won’t work,” they said, “You’d be surprised,” and oftentimes, I was.  Their optimism was infectious and slowly I began to realize that caring for Evan was so much easier when I gave up the negativity.

I’ll always be grateful to STAR for those early years.  It guided a terrified, exhausted family through an unplanned journey.  As Evan gets older and needs STAR more, I take great comfort knowing that it will be there.

Our Team

  • Joanna Galvin Joanna Galvin Team Captain $1,530.00
  • Cathy Holligan Cathy Holligan $30.00
  • Will Holligan Will Holligan $30.00
  • Jamie Camche Jamie Camche $30.00
  • Jim Wartinbee Jim Wartinbee $30.00
  • Liam Holligan Liam Holligan $15.00
  • Everett Holligan Everett Holligan $15.00
  • Kieran Wartinbee Kieran Wartinbee $15.00
  • Shane Wartinbee Shane Wartinbee $15.00
  • Brody Holligan Brody Holligan

$7,578.10

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$6,000.00

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Our Supporters

  • Monica Chimera May 2019 $100.00
  • quinlan Fitzgerald May 2019 $106.00
  • Erika Murtha Go Evan Go! May 2019
  • Ryan Galvin May 2019
  • Amanda Zorumski May 2019
  • Rebecca Brindley May 2019 $100.00
  • Patricia Mee May 2019 $375.00
  • The Nussbaum Family May 2019 $250.00
  • Nick Kahm May 2019
  • Navin Reddy We love you guys! GO EVAN!! May 2019 $159.00
  • Nancy Meany Love to you all! Wish I could be there in person to give you all a big bear hug:) 41003900Go Evan!!! May 2019 $50.00
  • Tina Hawks May 2019 $100.00
  • Anonymous May 2019 $500.00
  • Jenny Mehta Go Team Sisser!! May 2019 $53.00
  • Anna Lisa Ritchie May 2019 $53.00
  • Lauren Nussbaum May 2019
  • Jim Wartinbee May 2019 $100.00
  • Ailene Tisser Your friends at Swim Angelfish love you Evan April 2019 $53.00
  • Betsy Grzymkowski April 2019 $106.00
  • Olivia Jacquet April 2019 $159.00
  • View More Recent Supporters
  • Joanna Galvin April 2019 $1,500.00
  • Cathy Holligan April 2019 $530.00
  • Anonymous May 2019 $500.00
  • Patricia Mee May 2019 $375.00
  • Ned Adams April 2019 $318.00
  • The Nussbaum Family May 2019 $250.00
  • Navin Reddy We love you guys! GO EVAN!! May 2019 $159.00
  • Olivia Jacquet April 2019 $159.00
  • Kim Brandon April 2019 $159.00
  • quinlan Fitzgerald May 2019 $106.00
  • Betsy Grzymkowski April 2019 $106.00
  • Caroline Hoffman Go Evan's Awesome Team!! April 2019 $106.00
  • Currieand David Heidt April 2019 $106.00
  • Daniel Slawe Good luck from the Slawes to Evan and his team!! April 2019 $106.00
  • Mark Tower April 2019 $106.00
  • Nora Petkovich From Elise to Evan and team with love :-) April 2019 $106.00
  • Monica Chimera May 2019 $100.00
  • Rebecca Brindley May 2019 $100.00
  • Tina Hawks May 2019 $100.00
  • Jim Wartinbee May 2019 $100.00
  • View More Top Donors