Annual Bleeding Disorders Walk

Saturday, September 11, 2021

Thank You to Our Sponsors!

Recent Activity

  • Joshua Yeataihe registered

  • Eva Yeataihe registered

  • Simona Yeataihe registered

  • Arminas Burbulis registered

  • Lida Burbulene registered

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Help the Mary Gooley Hemophilia Center raise funds to help the Rochester-area Bleeding Disorders Community!

Important Update!

After much consideration, the Walk Planning Committee has officially decided to host this year’s Bleeding Disorders Walk as a virtual event!  Please know that this decision was not made lightly – the committee contemplated all options and decided that hosting a Virtual Walk was the safest and most effective way to go forward with our event this year. 

But you may be asking…what exactly is a Virtual Walk?

A Virtual Walk is a real walk experience designed to be done on your own terms – you choose your walking course, who to walk with, and when to walk at your convenience!  With this virtual event, the walking is real but the community is virtual.  You can help raise awareness of rare bleeding disorders in the comfort of your own neighborhood!  If you choose to participate in this event, we’ll ship out your Walk T-shirts by mid-October (as ordered when you first registered).  For all Walk teams, we’ll ship out shirts to team captains to distribute directly to their members.  We’ll also ship shirts directly to individuals and family households who aren’t part of a team.  You can pick a time to walk anytime at your convenience.  We only ask that when you/your team do your walk, you email us your best digital photos so we can proudly post them on the Center’s website and Facebook page.  Creativity and fun are highly encouraged!  To celebrate the season, we suggest an autumn or Halloween themed photo.  The rest is up to you!  Please email your photos by Friday, November 5th to:

We very much appreciate your support and understanding during this exceptionally challenging time.  Even virtually, your participation makes a tremendous difference to our regional bleeding disorders community!  However, we also understand and respect that this was not exactly the event you initially signed-up for.  If you would like your registration fee refunded, we would be happy to oblige, but kindly ask that you email us your refund request by the end of the day on Wednesday, October 6.  This will give us time to order the right amount of Walk shirts and ship out to all event participants.  If request for refund is not received by that day and time, we’ll take it as a “yes” that you’re on-board with this year’s virtual event. 

We truly cannot thank you enough for your kindness, patience and support.  Remember….every step counts!


The 2021 Bleeding Disorders Walk Planning Committee


This annual event raises funds to support people affected by hemophilia, von Willebrand disease and other rare bleeding disorders.  In addition to raising vital funds, this event helps strengthen the bleeding disorders community in our region by offering patients, families and friends a unique opportunity to come together to support each other and also raise awareness in the greater Rochester area.  

You can participate by joining the Walk and help raise funds individually, joining a team or even start up your own team!  As an added bonus, all registrants will receive a free T-shirt!  (Please note that in order to recieve an event shirt, you must register by Wednesday, August 25th.)

A light breakfast and snacks will be served and there will be fun activities for the whole famiily all morning long.  Once again, we'll  have great games and activities, as well as loads of amazing raffle baskets.  Invite your family and friends to this wonderful event, support the cause and share in the fun!

Need Help?

Have questions about this event or having trouble with this website (particularly with your username or password)?

Eric Iglewski





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Our Newest Participants

  • Joshua Yeataihe Joshua Yeataihe
  • Eva Yeataihe Eva Yeataihe
  • Simona Yeataihe Simona Yeataihe
  • Arminas Burbulis Arminas Burbulis
  • Lida Burbulene Lida Burbulene
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