We are pleased to be able to bring conference sessions to you virtually this year, at no cost. Your generous sponsorships and donations enable us to continue our mission to be here for every family who turns to us for help, whether by providing information, offering a referral for a second opinion, or supporting research aimed at finding a treatment and a cure for this terrible category of diseases.

Our Partners:

Centers for Disease Control and Prevention

Our Sponsors

Diamond Sponsor

Ionis Pharmaceuticals

Platinum Sponsor

Charles River