About the Campaign
What inspired the Red Tie?
The Red Tie was introduced as the symbol for the bleeding disorders community in 2016, when NHF and the U.S. Department of Health and Human Services worked together to designate March as an official U.S. health observance month — Bleeding Disorders Awareness Month. The Red Tie reflects the fact the blood ties — embodied in the color red and the tie — are what bind the community together.
What is the Red Tie Campaign?
NHF’s Red Tie Campaign is an annual campaign that aims to advance the fight against inheritable bleeding disorders by raising funds for research, education and advocacy initiatives.
When is Bleeding Disorders Awareness Month?
March is Bleeding Disorders Awareness Month. NHF successfully advocated to the US Department of Health and Human Services to have the designation officially recognized.
What are inheritable bleeding disorders?
Bleeding disorders are genetic disorders that affect the ability of a person’s blood to clot properly, which can lead to extended bleeding after injury, surgery, trauma or menstruation.
Hemophilia A and B affect 20,000 people in the US. The primary symptom is uncontrolled, often spontaneous bleeding in different areas of the body. Internal bleeding, which is common around joints, can result in pain and swelling and — if left untreated — can cause permanent damage.
von Willebrand disease (VWD) is caused by a deficient or defective blood protein: von Willebrand factor. The most common bleeding disorder, it is estimated to affect up to 1% of the US population. Symptoms include frequent nosebleeds, easy bruising and excessive bleeding following surgery, heavy or abnormal bleeding during menstrual periods and excessive bleeding after childbirth.
Rare Bleeding Disorders are deficiencies in clotting factor I, II, V, VII, X, XI and XIII. In general, these rare bleeding disorders are passed down in an autosomal recessive fashion, which means they affect men and women equally. This also means that when the factor deficiency is inherited from only one parent, the child will be a carrier of the condition, though he or she will usually not have symptoms. New mutations may also appear; in these cases, the family history will be negative.
Platelet Disorders Our blood contains small, sticky cells called platelets. Platelets stick to blood vessels and try to block the bleeding upon an injury. They also send out a chemical signal that attracts other platelets. Those platelets stick to the platelets at the injury site to form a plug that stops the bleeding. Platelets sometimes do not work as they should and when that happens, a person has a platelet disorder.
JOIN US DURING OUR SPECIAL MONTH OF BLEEDING DISORDERS AWARENESS!
Why March Matters
Our Chapter's Annual Giving drive is held every year during the month of March as part of the Bleeding Disorders Awareness Month. Funds raised during the campaign helps Bleeding Disorders Association of South Carolina to support research, global initiatives, community advocacy, education, and access to quality treatment care. All donations to our Red Tie Campaign stay within South Carolina to serve our community.
BDASC's Red Tie Campaign runs from Rare Disease Day, February 28th through World Hemophilia Day on April 17th.
Read Here what we are doing for ths special month and be sure to join us!
Thank you for supporting our awareness campaign!
Year Round Advocacy!
World Hemophilia Day Celebration in Greenville, April 17th!
With the right information, the global hemophilia community can take steps to feel more connected and protected. Join us for this year's One Family program celebrating World Hemophlia Day on April 17th from 6:30pm-8:30pm in Greenville. Our entire bleeding disorders community is welcome to register for this event.
This dinner event will be held at:
The Westin Poinsett Hotel
120 South Main Street
Greenville, SC 29601
For more information please visit our website at: https://bda-sc.org/events/recreational-programs/world-hemophilia-day-events/
To register, please visit: https://tinyurl.com/BDASCWHD2023
BDASC State Days - February 28- March 1
How can you take part in out 2023 Red Tie Campainge?
1. Make a donation! Every dollar helps us better the lives of our members, empower members with advocacy training, promote research, and share our stories.
2. Ask for a local Proclamation! Head over to our Proclamations Page to get everything you need to secure a Proclamation from your Town or City, and County. Help our Chapter take first place in securing the most Proclamations in the Nation!
3. Join us for Washington and State Advocacy Days.
4. Go RED for bleeding disorders! On March 17th, join the community in wearing red for bleeding disorders! Share a picture of yourself on Social Media and tag us in them. We also have a "I went Red" flyer that you can print out (or find in our print newsletter) to take a picture with. Find it here!
5 Proclamations received so far
State of South Carolina, County of Greenville, Town of Summerville, Anderson County, City of Irmo