2024 Dash for Dravet ○ Team Aarius
Shaquille Mendes
August 24, 2024 6:00am - November 28, 2024 11:59pm
That Guy A_Ry
Aarius was diagnosed with Dravet Syndrome @ the young age of 6months. Shortly after his 4month old set of shots - we started noticing arm twitching, leg shaking, eyes deviating to one side, & full body convulsions. He is non-verbal but knows how to get you to understand his wants/needs.Aarius is the youngest of three, he has two older sisters that care greatly for him. He loves Elmo, Sports, Pasta, & Pizza.
We’ve had numerous hospital stays some were short ; while some lasted days - we even had Thanksgiving there. This young guy had to be Med-Flighted once, & also put into a medically sedative state. As a toddler: you just wanna run wild, have fun & be free. Unfortunately for him thats a little tough. A few triggers are ; Change from Sunlight to Shade, Change in Temperature, & Overstimulation. There are many others who battle this fight just as him. Dravet Syndrome isn’t publicized as other disorders due to being such a rarity. That what this is for; bringing awareness, raising funds, developments in medicine, clinical trials, and coming together as a GROUP for Support. Your Participation is Greatly Appreciated & Won’t be Forgotten!!!
Thank yous’
Shaq M.
We Turkey Trottin’
We will be hosting a walk on :
Saturday ; November 16th
At : Fort Taber ; New Bedford, Ma
Meet-Up time 12noon walk for 12:30pm.
If you can join you’re absolutely welcome to. If not that is okay as well - go n’ take a stroll at a location of your choosing. It can even be around your own neighborhood.
*Please - try to wear or put something Purple in attire as its the Color that represents Dravet Syndrome.
Lets Go For a Turkey Trot!!!!
My Supporters
- Ty Todman November 2024 $30.00
- John Deandrade November 2024 $25.90
- Anonymous God bless your little warrior. October 2024 $51.79
- Luis & Maria Cabral October 2024 $200.00
- Anonymous October 2024
- Luis & Maria Cabral October 2024 $200.00
- Tania Arruda October 2024 $124.31
- Nathan Helger October 2024 $103.59
- Frankie Hand “ God saves his toughest battles for his strongest soldiers “ Love ❤️ The Hand fam October 2024 $103.59
- matthew thomas All We Need Is Happiness And Love October 2024 $103.59
My Teammates
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Shaquille Mendes $1,062.61
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Margaret DeSantos $30.00
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Tami Libby-Santos $30.00
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Heather Libby-Santos $30.00
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Kylie Libby-Santos $30.00
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Kamron Libby-Santos $30.00
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Stephanie Gamboa $30.00
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Cherylann Whipple $30.00
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Susan Libby $30.00
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Heather Beargeon Team Captain $30.00
View All Team Members