2024 Dash for Dravet   ○   Team Aarius

Shaquille Mendes

August 24, 2024 6:00am - November 28, 2024 11:59pm

That Guy A_Ry

Aarius was diagnosed with Dravet Syndrome @ the young age of 6months. Shortly after his 4month old set of shots - we started noticing arm twitching, leg shaking, eyes deviating to one side, & full body convulsions. He is non-verbal but knows how to get you to understand his wants/needs.Aarius is the youngest of three, he has two older sisters that care greatly for him. He loves Elmo, Sports, Pasta, & Pizza. We’ve had numerous hospital stays some were short ; while some lasted days - we even had Thanksgiving there. This young guy had to be Med-Flighted once, & also put into a medically sedative state. As a toddler: you just wanna run wild, have fun & be free. Unfortunately for him thats a little tough. A few triggers are ; Change from Sunlight to Shade, Change in Temperature, & Overstimulation. There are many others who battle this fight just as him. Dravet Syndrome isn’t publicized as other disorders due to being such a rarity. That what this is for; bringing awareness, raising funds, developments in medicine, clinical trials, and coming together as a GROUP for Support. Your Participation is Greatly Appreciated & Won’t be Forgotten!!! Thank yous’ Shaq M.

We Turkey Trottin’

We will be hosting a walk on : 

Saturday ; November 16th 

At : Fort Taber ; New Bedford, Ma

Meet-Up time 12noon walk for 12:30pm.

 If you can join you’re absolutely welcome to. If not that is okay as well - go n’ take a stroll at a location of your choosing. It can even be around your own neighborhood. 

*Please - try to wear or put something Purple in attire as its the Color that represents Dravet Syndrome. 

Lets Go For a Turkey Trot!!!!

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My Supporters

  • Ty Todman November 2024 $30.00
  • John Deandrade November 2024 $25.90
  • Anonymous God bless your little warrior. October 2024 $51.79
  • Luis & Maria Cabral October 2024 $200.00
  • Anonymous October 2024
  • Luis & Maria Cabral October 2024 $200.00
  • Tania Arruda October 2024 $124.31
  • Nathan Helger October 2024 $103.59
  • Frankie Hand “ God saves his toughest battles for his strongest soldiers “ Love ❤️ The Hand fam October 2024 $103.59
  • matthew thomas All We Need Is Happiness And Love October 2024 $103.59

My Teammates