Maddie "Bean" Pierson is our why. She is the perfect combination of kindness, happiness, sarcasm, and stubborness. I DARE you not to at least smile when you hear her laugh.She is the reason we fight for a cure.
The Dravet Syndrome Foundation is our how. They provide information to families like ours, are a uniting force for loved ones dealing with Dravet, and give us hope by raising money to fund research for better treatments and a cure.