Team Page: Warrior Johnny

2024 Dash for Dravet

Warrior Johnny

August 24, 2024 6:00am - November 28, 2024 11:59pm

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Johnny is a energetic 6-year-old, we love him so much and hope to find a cure!!!

 

Dravet syndrome is classified as a developmental and epileptic encephalopathy (also known as DEE), which is part of a group of severe epilepsies with frequent and difficult to treat seizures and significant developmental delays. Currently, Dravet Syndrome cannot be cured, although there are some truly promising clinical trials, and the future is uncertain.

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