A some people know, I got diagnosed with this ultra rare disease in 2019 and it has given me some problems. Since connecting with the ECDGA it has aided me to learn more to help yself live with this lifelong condition.

I’m thrilled to be participating in 2025 Virtual Fun Run Walk or Roll, a fundraiser supporting ECD Global Alliance! I’m passionate about this cause and need your help! Every donation—big or small—helps me reach my fundraising goal and directly impacts this important cause.

Here's how you can help:

• Donate: Contribute whatever you can. No amount is too small!
• Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!

Thank you for standing by me in this effort. Your support means the world to me!