2025 Virtual Fun Run Walk or Roll

Allison Lamb

May 18, 2025 12:01am - July 15, 2025 12:00pm

My Personal Fundraising Page

I'm raising money for Erdheim Chester Disease Global Alliance!

In memory of my dad, I am participating in a virtual run through the ECD Alliance this July. Erdheim Chester Disease is an ultra rare form of blood cancer, with only about 1500 documented cases worldwide since it was first discovered in 1930. 

My dad was diagnosed with ECD in 2017 and recently suffered an aggressive immune response called HLH that he did not survive. Unfortunately, none of the providers he saw while he was in the hospital knew anything about ECD. This is a common occurrence and many patients often get misdiagnosed as a result. 

Every donation—big or small—helps me reach my fundraising goal and directly impacts this important cause.

Here's how you can help:

  • Donate: Contribute whatever you can. No amount is too small!
  • Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!

Thank you for standing by me in this effort. Your support means the world to me!

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My Supporters

  • Sean Brien July 2025 $100.00
  • M SNURK July 2025 $50.00
  • Elisabeth Solari July 2025 $100.00
  • Paul Thelin July 2025 $100.00
  • Sam Njue July 2025 $50.00
  • All Points Fly Shop + Outfitter July 2025 $250.00
  • Anne Atlas July 2025 $250.00
  • Margaret Verrochi June 2025 $200.00
  • DOREEN BERGLUND July 2025 $103.50
  • Hayley Smith July 2025 $103.50