This March, I’m giving up my daily cup to support families like ours through the work of the Dravet Syndrome Foundation.

Our daughter Marianna was diagnosed as a baby after her first seizures began in infancy. Her seizures can be long, unpredictable, and life-threatening — sometimes lasting up over an hour and requiring emergency care and intubation. Watching your child fight something you can’t see or stop is something no parent is ever prepared for.

Dravet syndrome is rare, complex, and lifelong. It affects far more than seizures — development, safety, and everyday routines are all impacted. But research, education, and family support make a real difference — and that’s exactly what DSF works to provide. Dravet doesn't receive grants from the government nor alliance with any other epilepsy foundations quietly carrying it. The reality is the most meaningful dravet research only moves because families fund it themselves. When families stop advocating and donating progress slows or stops. 

For this virtual fundraiser, I’m giving up my coffee/tea/“cup” for 30 days in March and donating what I would have spent instead.

If you’re able, join me:
1. ☕ Give up a cup for a day, week, or month
2. Donate what you save
3. Share to spread awareness

Every small sacrifice adds up to hope, research, and better care for kids like Marianna. #PourItForwardForMarianna