Hope Grows This Holiday Season
This holiday season, Hope for HIE is raising $20,000. Every gift goes where families need it most.
Why $20,000
For many families, the first time they hear the words hypoxic ischemic encephalopathy, or HIE, is in a hospital. HIE is a brain injury caused by a lack of oxygen (hypoxic) and restricted blood flow (ischemic) to the brain (encephalopathy). It can happen before, during, or after birth, and during childhood. Last year, more than 1,000 of those families received a support package from Hope for HIE, often in the first days after diagnosis. For many, it was the first sign that a community who understands HIE is here for them. Support packages are a valuable tool for social workers and clinicians - helping them bridge the gap between a clinical diagnosis and the beginning of a family's new journey.
Our $20,000 goal is about what it takes to provide a full year of support packages. Reaching it means a full year of families can begin their time with Hope for HIE knowing they are not alone.
"Receiving the Hope for HIE NICU Support Package meant so much to our family during an incredibly overwhelming time. The package was a reminder that other families understood this path and that we were not alone in it. It made us feel seen, supported, and connected to a community that truly understands the uncertainty and hope that come with HIE."
- Aspen B.
Where your gift goes
Hope for HIE provides support and services at no cost to families. This might be in the form of a support package, or it may be:
- Peer mentorship, connecting families with trained mentors who have their own experience of HIE
- Support groups, where parents and caregivers can talk with others who understand
- Social work, helping families find resources and navigate what comes next
- Child life support, helping children and families cope with medical experiences and change
- Sibling and teen programs, for brothers, sisters, tweens, and teens affected by HIE
- Bereavement support, for as long as families need it
- Family education, clear information families can return to whenever they need it
- Research & Advocacy, our patient-family data registry and partnerships with hospitals, universities, and industry to advance HIE awareness and care
However it's used, your gift helps make sure no family faces HIE alone.
