For the second year, the NPKUA board has formed a Move Your Pheet relay team to help raise funds for the National PKU Alliance. The NPKUA Board is showing our support for the organization and its mission through forming a team, and we would be so grateful to have your support- no amount is too small- this is a grassroots project. I have a personal goal of raising $500 from friends and family, so your help would be much appreciated. Please feel free to forward this along to anyone else you think might be interested.
Thank you for your consideration and ongoing support over the years. Tia is doing beautifully on Palynziq and we remain grateful for that life changing therapy on a daily basis.
The National PKU Alliance (NPKUA) is a nonprofit organization dedicated to improving the lives of individuals with phenylketonuria (PKU), a rare genetic disorder. Founded in 2008, NPKUA works to advance research for new treatments and a cure, support families and individuals living with PKU and advocate for policies that ensure access to care. To learn more and get involved, visit npkua.org.
NPKUA is an independent organization and a registered 501(c)3. EIN: 26-2849140
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