Our son Evan is the happiest little boy you’ll ever meet—but he was born with classical PKU, a rare condition that affects how his body processes protein.
Managing PKU is part of our everyday life. It means a strict diet, constant monitoring, and careful planning to keep him healthy and thriving. While Evan takes it all in stride, it’s a lifelong journey for our family.
We’re participating in the NPKUA’s Move Your Pheet fundraiser to support research, improve treatments, and raise awareness for PKU—so kids like Evan can have the brightest future possible.
If you’re able to donate, we are so grateful. If not, sharing this page means the world to us.
The National PKU Alliance (NPKUA) is a nonprofit organization dedicated to improving the lives of individuals with phenylketonuria (PKU), a rare genetic disorder. Founded in 2008, NPKUA works to advance research for new treatments and a cure, support families and individuals living with PKU and advocate for policies that ensure access to care. To learn more and get involved, visit npkua.org.
NPKUA is an independent organization and a registered 501(c)3. EIN: 26-2849140
×
Who's fundraising?
Hi ! You're managing 0 fundraising profiles. Choose a participant to switch to their fundraising dashboard.