We are participating in Move Your Pheet in honor of our beautiful granddaughter, Aria (born in March) to raise awareness and support for the National PKU Alliance. PKU, or phenylketonuria, is a rare genetic condition that affects a person's ability to break down an amino acid found in protein. Without proper management, it can lead to serious health issues.
NPKUA is dedicated to funding research for better treatments, supporting families living with PKU and working toward a cure. My wife and I along with my brother and sister in law are walking the Camino Frances in May-June. This is a 535 miles pilgrimage in France & Spain of which we will be walking almost 300 miles in the month of May in celebration of PKU Awareness Month. Every step we take — and every dollar you give — brings us closer to a future without limits for those with PKU!
Please donate and help make a difference. Your support means the world. Let’s move together and create real change!
The National PKU Alliance (NPKUA) is a nonprofit organization dedicated to improving the lives of individuals with phenylketonuria (PKU), a rare genetic disorder. Founded in 2008, NPKUA works to advance research for new treatments and a cure, support families and individuals living with PKU and advocate for policies that ensure access to care. To learn more and get involved, visit npkua.org.
NPKUA is an independent organization and a registered 501(c)3. EIN: 26-2849140
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