People often ask me why I dedicate so much of my time to a disease that doesn't directly affect my own family.
The answer is simple.
Because the MSD community has become my family.
Serving as Board President of the United MSD Foundation has been one of the greatest honors of my life. I've watched families face challenges most of us can't imagine, yet they continue to lead with incredible strength, resilience, and hope.
Today, we're standing at an extraordinary moment.
For the first time, families are preparing for clinical trials that have the potential to change the future of Multiple Sulfatase Deficiency. After years of research, advocacy, and determination, hope is becoming something tangible.
But this journey isn't over.
Families will need support as they travel, participate in clinical trials, and navigate everything that comes with this next chapter.
That's why I'm asking for your help.
Whether you give $10, $25, $100, or simply share this page, you're helping bring hope to families who have waited years for this opportunity.
Thank you for believing in this mission and for standing with the MSD community.
Built on Hope. Bound for Breakthroughs.