July of 2025 was the beginning of our journey as parents of a medically complex child. Our sweet Jovie was diagnosed with a rare genetic disorder called Dravet Syndrome, a catastrophic medicine-resistant epilepsy disorder. She also has other missing genes linked to global developmental delay and intellectual disability.

From just 3 and a half months old our daughter has battled through uncontrolled seizures, multiple anti-seizure medications, testing, therapy sessions, and hospitalizations. She continues to face challenges every day.

But, despite the hardships, Jovie continues to inspire us all. She's an example of resilience and each day she reminds us to be grateful. Our life is abundant because of Jovie. Our faith has grown and we have found immense joy in our journey as we cling to the Lord for healing, peace, and wisdom. 

Spreading awareness and raising money towards a cure creates an opportunity to change our lives and the lives of others impacted by Dravet Syndrome. We're doing our part to help advance research, improve understanding of our Dravet Community, and create hope for better treatments so that our Dravet Warriors can have an improved quality of life.

The Dravet Syndrome Foundation has been an incredible resource for us. They equipped us with knowledge and gave us the ability to advocate for our daughter. They connected us to community and a comprehensive treatment center for Dravet Syndrome. They have kept us informed on the latest treatment, clinical trials, and advancements in care. 

We believe that this foundation is doing the best they can for families like ours that are affected by Dravet Syndrome. 

Will you prayerfully consider supporting our cause by spreading awareness and donating?

Every like or share matters! Every dollar matters! More importantly, every prayer and encouragement matters. Thank you! We're grateful for you.