Thank you for visiting our page! We are raising funds for the Dravet Syndrome Foundation (DSF) in honor of an incredible man: my brother, Daniel.

If you know Daniel, you know he is full of light, energy, and an unshakeable spirit. He loves being with family, going on car rides, snuggling, and holding hands. He is a man of simple, joyful pleasures—he loves popcorn, a breakfast of eggs and toast (or a bagel with cream cheese!), and nothing beats a Number 7 from McDonald’s with a crisp Diet Coke.

But most of all, Daniel loves his dinosaurs. He carries them with him everywhere he goes—you can even spot them in his pictures! That is why our fundraising team is proudly named Daniel's Determined Dinos.

A Long Journey to an Answer (1995 – 2008)

Daniel’s journey has never been easy. Born in 1995, he spent the first 13 years of his life enduring endless seizures, exhausting hospital stays, and a grueling cycle of trials and tribulations. We tried the ketogenic diet and countless medications that would work for a little while, only to stop working.

Through all those years of constant seizures and exhaustion, one thing never faltered: Daniel’s amazing smile.

Daniel was blessed to inherit our mom’s bright, beautiful smile. Even though she has passed away, looking at Daniel's smile reminds us that there is still so much of her left in this world. He carries her warmth with him every single day.

The Turning Point & The Power of Research

In 2008, we finally got answers. The incredible team at the Mayo Clinic officially diagnosed Daniel with Dravet Syndrome.

That diagnosis changed everything. In 2009, guided by the Mayo Clinic's protocols, Daniel started a medication regimen that gave him—and our family—a miracle: a whole year completely seizure-free. Our lives were dramatically changed for the better.

This is why the Dravet Syndrome Foundation means the world to us. Over the years, the funding they raise for research, clinical trials, and new medical protocols has directly increased both the life expectancy and the quality of life for individuals like Daniel. We are forever grateful for their work.

The Daily Fight (and a Recent Update)

Dravet Syndrome is a lifelong battle. Today, Daniel takes seven different seizure medications and still faces difficult hurdles.

Just recently, from this past Friday through Sunday, Daniel had to be admitted to the hospital due to an increase in seizure activity. He had to have electrodes glued to his head for a continuous weekend-long EEG test so doctors could monitor the synapses triggering his seizures and balance his medication levels.

It was a tough weekend, but true to form, Daniel’s resilient spirit shone through.

Why We March & How You Can Help

If there is one thing we can all learn from Daniel, it is how to love others, how to accept love, and how to find joy and smile through the toughest circumstances.

We are fighting for Daniel’s quality of life, and for the lives of every individual and family affected by Dravet Syndrome. Please consider donating to Daniel’s Determined Dinos or sharing our page. Your support funds the exact kind of research that gives Daniel a brighter, safer tomorrow.

Thank you for loving Daniel, and thank you for your generosity!