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Our Newest Registrants

  • RW Richard Whitman
  • EB Eva Berman
  • AW Amy White
  • PO Patrick O’Connor
  • NS Nicolas Szabo-Fresnais
  • JV Jackie Vroman
  • IP Isabella Panse
  • LA Laeeika Ashrafi
  • SB Sarah Berger
  • EL EDOUARD LE GUILLOU
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2026 Multiple Sulfatase Deficiency Virtual Summit

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About the 2026 MSD Virtual Summit

September 18–19, 2026
9 AM – 2 PM CT
ZOOM | Live Translation
Registration is free for all participants

Unparalleled Connection to a Global Network

This summit brings together a unique, global network of stakeholders:

  • Leading scientists and researchers exploring cutting-edge gene therapy, drug repurposing, and other potential therapies
  • Clinicians and care providers seeking the latest protocols and research insights to improve patient outcomes
  • Resilient families and advocates from around the world who are the driving force behind our community

Announcing the Official Schedule for the 2026 MSD Virtual Summit!

We are excited to share that the official schedule for the 2026 MSD Virtual Summit is live! Hosted by the United MSD Foundation, this global virtual gathering brings together leading clinicians, researchers, advocate organizations, and families affected by MSD to share critical updates, research breakthroughs, and care strategies.

Event Highlights & Structure

The summit program is packed with expert-led presentations across key areas of MSD clinical research, therapeutic pipelines, and family support:

  • Disease Categorization & Natural History: Updates on natural history studies, brain MRI findings in MSD, and biomarker profiling presented by key experts like Dr. Laura Adang and Dr. Lars Schlotawa.

  • Preclinical & Therapeutic Research: Insights into emerging gene therapies, cellular models, and innovative drug targets aimed at restoring sulfatase activity.

  • Clinical Care & Patient Outcomes: Best practices for managing MSD symptoms, improving quality of life, and supporting family caregiving routines.

  • Interactive Q&A Sessions: Dedicated opportunities for attendees to engage directly with researchers and clinicians.

View the Full Schedule & Plan Your Days

Whether you are a healthcare professional, researcher, or family member, the full line-up of speakers and session times is now available to help you plan your attendance.

Explore the Full MSD Virtual Summit Schedule Here

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Register for the Virtual Summit!

Register Here

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