Personal Fundraising Page for Nick Viles

Please help me support my daughter, Ella and Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.

Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to their recovery. 

Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.

My Supporters

  • Brad Meads 19 hours ago
  • Lisa Cole We love you guys! A day ago $50.00
  • Carolyn and Bill Kurth 2 days ago $50.00
  • Keith Mccubbin Miss you guys…give Ella a big hug from the McCubbin’s. Tell your better half we said hello. 5 days ago $100.00
  • Anonymous Praying for a cure for my great niece Ella and all the others impacted bt Rett's. 5 days ago
  • View More Recent Supporters
  • Keith Mccubbin Miss you guys…give Ella a big hug from the McCubbin’s. Tell your better half we said hello. 5 days ago $100.00
  • Lisa Cole We love you guys! A day ago $50.00
  • Carolyn and Bill Kurth 2 days ago $50.00
  • Samantha Kuhn 5 days ago $50.00
  • View More Top Donors

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