Sarah's Girls - Running For A Cure for Rett!

Remembering Sarah Lily

On August 4, 2021, beautiful Sarah Lily lost her battle with Rett Syndrome. During her short 12 years, Sarah impacted so many lives with her strength, love, and contagious smile. Please help support Sarah's Girls as we run in sweet Sarah's honor! You can help us by supporting Girl Power 2 Cure in their efforts to raise funds for Rett Syndrome research so no family is left with empty arms again.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.

Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to their recovery. 

Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.

Recent Activity

Our Supporters

  • Abby Elkin Run Rachel Run! Cheering you and the whole team on from NYC for a great cause and clearly a very strong family with great friends. January 2022
  • Anonymous January 2022
  • Maria Teresa Isaacs January 2022
  • Hilary Benson January 2022 $50.00
  • Janet Nuzzolilo In memory of Nana’s beautiful big girl” Sarah Lily Quartell January 2022 $250.00
  • Patricia Litchfield November 2021 $300.00
  • Janet Nuzzolilo In memory of Nana’s beautiful big girl” Sarah Lily Quartell January 2022 $250.00
  • Anthony & Linda Napoleon This is in loving memory of our precious granddaughter Sarah November 2021 $250.00
  • Cross Tayri In memory of our girl Sarah Lily. We miss you dearly. November 2021 $200.00
  • Darryl Crowder November 2021 $100.00

$3,585.00

achieved

$3,000.00

goal

of your goal reached

0

days

0

hours

0

mins

0

secs