Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome and a cure for Alice!

As most of you know, Alice was diagnosed with Rett Syndrome in 2019 at 2.5 years old. That year she started having seizures which was followed by her first regression and loss of developemental skills. She works everyday to maintain her strength & limited mobility. Alice started working with GP2C last summer through their Rett University program. Through Rett Univerity,she is learning low to read and write with her Eye Gaze device. She meets with Susan twice a month and is making amazing progress.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys). Rett Syndrome is the leading genetic cause of severe neurological impairment in girls and is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.

Despite their physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to their peers. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to a cure and their recovery. 

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Mouse and primate experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside.

We would give anything for Alice to live a long and fulfilled life, without Rett Syndrome. If you feel led to sponser, donate or share this fundraiser, please know that we are forever grateful for your support!