In Loving Memory of Skylar Ann Proffitt
Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome. This will be my 14th year running for GP2C and my 7th year keeping my promise to Skylar and keeping her Memory going strong. This year, my husband, Robb, will be joining me to run the 5K and 10K.
Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys). Rett Syndrome is the leading genetic cause of severe neurological impairment in girls. It is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.
Kids are born “normal,” but without the protein, they begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.
Despite their physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to their peers. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to a cure and their recovery.
Today, there is no cure. But Rett Syndrome is potentially CURABLE! Mouse and primate experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside. With your support over the years, DayBlue is a drug to help the symptoms of Rett syndrome. Let's continue to support this amazing cause that I will always hold right next to my heart and in my soul.
My Supporters
- Custom Mobility, Inc. 3 weeks ago $250.00
- Mi Palm 5 weeks ago $100.00
- Lily Perez June 2026 $48.00
- Christina Southerland June 2026 $50.00
- Donna Fuentes $16 because she will forever be 16 $24 to celebrate her birth and life 24 years ago. Always on my mind! June 2026 $40.00
- Custom Mobility, Inc. 3 weeks ago $250.00
- Mi Palm 5 weeks ago $100.00
- Christina Southerland June 2026 $50.00
- Lily Perez June 2026 $48.00
- Donna Fuentes $16 because she will forever be 16 $24 to celebrate her birth and life 24 years ago. Always on my mind! June 2026 $40.00