On August 4, 2021, beautiful Sarah Lily lost her battle with Rett Syndrome. During her short 12 years, Sarah impacted so many lives with her strength, love, and contagious smile. Please help support Sarah's Girls as we continue to run in sweet Sarah's honor! You can help us by supporting Girl Power 2 Cure in their efforts to raise funds for Rett Syndrome research so no family is left with empty arms again.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys). Rett Syndrome is the leading genetic cause of severe neurological impairment in girls and is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.

Despite their physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to their peers. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to a cure and their recovery. 

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Mouse and primate experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside. Though not in Sarah's lifetime, we know a cure is on the way and will forever change lives. And we will keep running in Sarah's honor until that day!

Thank you so much for your love + continued support,

Sarah's Girls 2024

AKA Jessica (Sarah's Mom), Rachel, Evelyn, Lenka (running virtually in Slovakia), and Mira