Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females like my beautiful niece Maisy. Rett Syndrome is the leading genetic cause of severe neurological impairment in girls and is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Maisy was unable to speak, walk or use her hands, and depended on her family for every part of her day. Complications also include seizures, scoliosis, and the potential for sudden death.

Although it isn't easy getting up at 3am and running 3 days in a row.  Running these 22.4 miles helps me to honor Maisy's memory and raise funds towards a cure. 

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Mouse and primate experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside.