Girl Power 2 Cure supports individuals with Rett Syndrome and their families, like mine. They have provided my daughter Lexi and our family with tools for her communication and education. It means so much to me and my family if you could help in our fundraising efforts. 

Lexi is now 8 years old but was first diagnosed with Rett Syndrome at 3.5 years old. Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys). Rett Syndrome is the leading genetic cause of severe neurological impairment in girls and is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.

Kids like Lexi are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.

Despite their physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to their peers. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to a cure and their recovery. With support, Lexi is in a general education 1st grade classroom, learning math, reading and much more alongside her friends. 

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Mouse and primate experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside.

Nick and I will be running the Disney Princess 10k in honor of Lexi. We ask that you support us by donating today.

With all my heart - Thank you!