Heidi’s Personal Fundraising Page

Please sponsor me in my first Disney Princess Half Marathon Race. I will be participating in the 10K for a great charity called Girl Power 2 Cure!

Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys). Rett Syndrome is the leading genetic cause of severe neurological impairment in girls and is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.

Despite their physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to their peers. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to a cure and their recovery. 

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Mouse and primate experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside.

My Supporters

  • Bob Frink February 2024 $100.00
  • Anonymous January 2024
  • Breana Coleman Good luck! See you there!! January 2024
  • Laura Rosa Way to go Heidi January 2024 $25.00
  • Sammy Masiello Coleman Have a great time on the 10k!!!! You’re gonna do great! January 2024 $30.00
  • Bob Frink February 2024 $100.00
  • Stephen DiCaprio December 2023 $100.00
  • Elaine Robinson January 2024 $55.00
  • Anonymous Have with the Princesses and Mickey. January 2024 $50.00
  • Jennifer Robitaille Run, Heidi! Run! January 2024 $50.00

$810.00

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$650.00

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