2026 Dash for Dravet

Candace Watson

September 24, 2026 6:00am - November 26, 2026 11:59pm

Dash for Dravet — For Marianna

Our family’s world changed when our daughter, Marianna, began having seizures at just four months old. At six months old, she was diagnosed with Dravet syndrome, a rare, lifelong, drug-resistant form of epilepsy caused by a pathogenic SCN1A variant. Since then, Marianna has endured prolonged seizures, emergency room visits, multiple medications, therapies, and more medical appointments than any little girl should have to know. But Dravet is only part of her story. She is joyful, determined, funny, and incredibly loved—and she inspires us every single day. This year, I’m participating in the Dash for Dravet Turkey Trot in honor of Marianna and every family living with Dravet syndrome. As a Dravet Syndrome Foundation Ambassador and Marianna’s mom, I’ve seen firsthand how important research, education, advocacy, and family support are. Every dollar raised through my page benefits the Dravet Syndrome Foundation and helps move us closer to better treatments—and ultimately, a cure. Whether you donate, participate, or simply share our page, thank you for standing with Marianna and the entire Dravet community. We’re dashing for Marianna. We’re dashing for hope. And we’re dashing toward a future without Dravet. ?? #DashForDravet #DravetSyndrome #CureDravet #MariannasDravetMission

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  • Candace Watson 4 weeks ago $32.51
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