2026 Dash for Dravet

Mindy Tyra

September 24, 2026 6:00am - November 26, 2026 11:59pm

Kate’s Tribe Fundraising Page

Our Dravet Syndrome Story

Kate was only 4½ months old when her first seizure struck. By 8 months old, after numerous tests and terrifying episodes, she was diagnosed with Dravet Syndrome. That first year included seven 911 calls, seven ER visits, five hospitalizations, and a scary stint in the NICU on a respirator.

Today, thanks to a heavy cocktail of medications, we have achieved some seizure control—but Kate still fights seizures almost every day. Because she experiences multiple seizure types, she requires 24/7 care and monitoring. Dravet Syndrome has also brought significant physical and cognitive delays, behavioral challenges, and sleep struggles into her daily life.

But there is real hope on the horizon.

The Dravet Syndrome Foundation not only provides a lifeline to families like ours, but it also directs millions of dollars straight into groundbreaking research. Right now, promising gene therapy trials are underway that could do more than just manage symptoms—they have the potential to target the root cause, a mutation in the SCN1A gene.

To keep these critical, life-changing research projects moving forward, we need your help.

Our ultimate dream is for Kate to live a life free from seizures, giving her the opportunity to learn, grow, and thrive. This Thanksgiving, please consider making a donation to help us reach our annual goal. Every bit brings us closer to a cure.

Thank you from the bottom of our hearts for your love and support!

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My Supporters

  • Mindy Tyra 2 weeks ago $161.13
  • Mindy Tyra 2 weeks ago $161.13